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Hello! My younger son (9) was diagnosed with Aspergers Syndrome yesterday. It was not a big surprise but I do feel a bit lost as I was given a handout and basically told "best of luck"!

Not sure what I should do next. I have ordered a couple of books - one for me to learn a bit more and one for son that we can read together to explain it. (He knows something is different about him but I have not talked about meeting his paediatrician or the diagnosis yet).

There do not seem to be any support groups in my area.

Parents
  • Hi Frith

    Sounds like you have been through a lot and already experienced the 'variety' of attitudes in education. What comes across is that mainstream schools just cannot cope very well and your son will only benefit from specialist teachers at this 'autism base' whatever that is.

    We live in a very rural location and didn't even have a choice of 3 mainstream schools, let alone the other facilities you talk about. Well done at winning the appeal. I didn't go down that route, even though my son was excluded (it was illegal) because I didn't want him to be at a school where he was not welcome. I jumped about a bit and sent letters but was getting too stressed over it all. The education authority seemed to be bogged down in their own policies and couldn't act on them. I felt very let down by the local school which is the hub of the local community. They were so good for my other son (2 years older) who was an A* student and very easy to teach. Yeah, he was good for their league tables!

    But for your boy, please take care if he goes to mainstream school. It can be a cruel place, bullies rule whatever the school's policy on bullying is. Most teachers are not trained to deal with ASD kids in mainstream schools. Your son would be vulnerable when alone, like at break times. Protect him.

    My lad is facing the scary world of work soon (or signing on!). He will always have aspergers, but you can't go waving a special needs certificate in adult land, no one much cares. Luckily I have 3 other kids and other family to look out for him while he makes his own way.

    Good luck!

Reply
  • Hi Frith

    Sounds like you have been through a lot and already experienced the 'variety' of attitudes in education. What comes across is that mainstream schools just cannot cope very well and your son will only benefit from specialist teachers at this 'autism base' whatever that is.

    We live in a very rural location and didn't even have a choice of 3 mainstream schools, let alone the other facilities you talk about. Well done at winning the appeal. I didn't go down that route, even though my son was excluded (it was illegal) because I didn't want him to be at a school where he was not welcome. I jumped about a bit and sent letters but was getting too stressed over it all. The education authority seemed to be bogged down in their own policies and couldn't act on them. I felt very let down by the local school which is the hub of the local community. They were so good for my other son (2 years older) who was an A* student and very easy to teach. Yeah, he was good for their league tables!

    But for your boy, please take care if he goes to mainstream school. It can be a cruel place, bullies rule whatever the school's policy on bullying is. Most teachers are not trained to deal with ASD kids in mainstream schools. Your son would be vulnerable when alone, like at break times. Protect him.

    My lad is facing the scary world of work soon (or signing on!). He will always have aspergers, but you can't go waving a special needs certificate in adult land, no one much cares. Luckily I have 3 other kids and other family to look out for him while he makes his own way.

    Good luck!

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