hello and help

Amy thank you for your very helpdul and usual advice.  I can still remember the problems I had last time at hospital.  Your idea about imagining how I felt is a great one, one nurse was particularly good, she always explained things to me, poor communication is something that really stresses me out, people assume I can undertand the nuances of body languages, facial expressions and vocal clues in what they are saying, which I cannot.  If it is not straight forward communication when I am in a stressful situation this again is very frustrating.

I will keep looking for peer support, someone may offer to be a buddy one day.

Thanks again for the support and suggestions, you have been so kind and helpful

Thanks to everyone who has contributed, it really has helped.

Hello

I do not have a template as such because I made it up myself as I went allong. But I could try to give instructions with what I did, that you could perhapse change slightly to fit in with yourself.

I started writing it when I was in my last year at school. So I was in a place I knew well, with people who knew me and who I knew. But, as i was asked the idea of it was something to give to new teachers so they know about me and how to help. So I sat in lessons at school and imagined myself in the same lesson and class that I knew but with a completly new teacher. Then I asked "what would I want this teacher to know about me that would help me?" or it could be changed to "what does my normal teacher do to help me?" Or other similar questions. I also asked "What could cause me a problem if I was with people I knew but in a different place?" So I broke down the whole situation and focused on one thing each week. I wrote all these answes down and then turned it into a list of information about me. I did the same for all the other times in school such as moving between lessons, tutorials, assemblies, lunchtimes ect. 

So, could you do something similar? I imagine you have no chance now to be where you would be but could you imagine you are in hospital and answer similar questions. such as "what would I like the nurses to know about me to help me?" or think to a nurse you really liked or disliked. what did they do that was good or bad. Include things like that. It can be anything from what you like, don't like, what you can or can not do or what you need help with. Or anything else you think it would help if people knew. 

Sorry I can not help more with this, but if you think of any question that could help let me know.

To the seccond thing about asking for a buddy. I heard you can get a buddy through the NAS but I do not know exactly how. They have people that do it in specific areas and also an online buddy is something I have heard about. I just tried searching the website and can not find it but someone else may know more about it. Or you could use the advice service to ask them about it. 

Amy

That is a good link explorer.  Perhaps it could be put on other parts of the NAS site.

I think the template is very good, there are sections I do not need but it will help me a lot.  It was suggested by my local trust to use a passport but they didnt have one of theor own so I scoured the internet, not many trusts have them.

There is a very good template that you might find easier to use, here: http://flfcic.fmhi.usf.edu/docs/FCIC_Health_Passport_Form_Typeable_English.pdf

Citizens advice may be able to help you fill it in. If you have a social worker, they might help too, or ask in the health centre if they can suggest anyone, as it was the NHS who suggested it would be useful. What do other people think of this template?

Thank you for your reply.  I am also a wheelchair user and have heart failure,

Forms are always difficult for me, so is why I asked for help.

I agree the form is not entirly suitable for Asoergers sufferers.  I have tried to search for other templates etc bt have come up with a blank.

Your idea for colleges seems more like what I am looking for. Dont suppose you have a template?

I was told to find a 'buddy' to help me fill the form, but living alone who do you ask, aoart form work I dont oftengo out.

Thanks again

Hello

I have just had a look through that and I can understand your problem. I think most of it is not really relevent to you or generally to people with Aspergers so it would be hard to fill in. You clearly have things to write which are not asked about and much of it is asking about things you have no issues with (such as mobility-unless you have aditional problems as well as Aspergers which you do not mention) Do you have to use it? 
If not I would consider making your own. I think the first bit is okay, with your details in it but I would create my own version that was relevent to me and use that instead.

I did an 'about me' for when I started collage last september. I do not think they used it much but I have experience of creating such a thing and I think it could help you here. Basiclly it has different sections in it. Such as in lessons, out of lessons and all the time. Then it includes things I partikually like, dislike or any helpful information. I did not do it all at once, but thought about it while I was still in school and used the things I knew to write what would help if I was somewhere similar but different. Could you do something similar to me but relating to care or being in hospital?

Hope some of this helps. Feel free to ask any more questions about anything
Amy 

I have added a link to one, the reason I have been given one was very bad experience as an in patient last year, when either I was ignored or treated like I was an imbecile.

www.ekhuft.nhs.uk/.../

It will be very helpful if I could just see hw someone else would fill this in.

Do you know where the forms can be downloaded so we can have a look at them?

Hi bigcol,

I have never heard of the 'health passport' but have now just had a look and I cannot see where your specific needs go. I created a one page document for my friend in case I ever get taken to hospital.  The only advice I could give is to include some very 'concrete' examples of what you mean.