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SIX YEAR OLD SON WITH ASD

puffin

Hi All,

New to this site, my son has not yet been formally diagnosed but his teacher called us in to shool ten months ago now after my son was struggling to settle into P1, she first suggested he was on the spectrum my husband and i were blissfully unaware Frown he is our only child and we live in a remote area so we have never really compared him to others!  We now meet every 3 months with his school and he is progressing and i am more confused than ever!!  i have read loads of books and still have more questions. I am sad and yet know how lucky i am to have my lovely child but i fear for him his naievity,his anxiety in new situations, he does not stand out from the crowd too much at the moment but i fear this will worsen with age.  I suspect Aspergers as he was not late in developement and is quite clever.  His school say not worth being formally accessed till he is due to go to high school as there is no more they can do locally.  At the moment they run a lego club, and do circle time to cover emotions, is there any thing else that can be done ?  They say they are dealing with any issues he has not been statemented, should i get him assessed?  It is just i have read early intervention can be a great help and i want to do all i can.

Thank you

 

 

Parents

  • Hello all,

    Thank you for your comments and support,  Thankfully my son does go to a very small mainstream school the local speech therapist who sits in on school meetings has said he is in the best possible place for a child like my son.  The school shares a support for learning teacher with a another local school, i think she comes in a couple of hours a week to run the lego class and circle times.   It has been a strange roller coaster ride of a year after the first mention of Autism by his primary one teacher.   a few months later we were referred to a speech therapist  as my son is quite shy and does not speek up often a school at home he is a differnet child! hates to be the center of attention, at the end of a second visit with speech therapist she said" i am pleased to say your son does not have a disorder, enjoy him " i will never forget the relief nor those words, but at my last school meeting in November i repeated them back to the therapist with the other teachers present , and she said "that was before i had the full picture"  !!  he has been making progress and all in the meeting agreed not worth referring him for a assesment i got the impression (although no one wants to commit) it was not worth "labelling" him as no more local goverment of facilities available near us to help so not worth it, he is improving with schools help alone.  although no playground assistant as school so small 28 pupils andthis is one of his biggest problem areas.

    I guess i am also scared to "label" my son and why give him that label if he will not get help,!  We live in a remote area in the highlands.

    My husband is convinced he also has the condition,we have been together twenty five years,! no family live near, i have no close friends and the stress of dealing with them both is unbearable at times!

    My son is happy and loving in our small family enviroment, dislikes change, getting things wrong, fussy eater, vert sensitive and bright but at school he barely speakes to his teachers seeks out friends at playtime but struggles to play unless on his terms and takes things literally, easily led.

    Can i get any help for my son privatly without him being labelled?  I am not against the label but ifthere really is nothing more they can do what is the point?  and yet as i type that a big part of me feels i really need to know for me as long as it will not harm my son.

    Sorry to go on, this site is my only means of getting it all off my chest and i think it shows!

    Thank you

Reply

  • Hello all,

    Thank you for your comments and support,  Thankfully my son does go to a very small mainstream school the local speech therapist who sits in on school meetings has said he is in the best possible place for a child like my son.  The school shares a support for learning teacher with a another local school, i think she comes in a couple of hours a week to run the lego class and circle times.   It has been a strange roller coaster ride of a year after the first mention of Autism by his primary one teacher.   a few months later we were referred to a speech therapist  as my son is quite shy and does not speek up often a school at home he is a differnet child! hates to be the center of attention, at the end of a second visit with speech therapist she said" i am pleased to say your son does not have a disorder, enjoy him " i will never forget the relief nor those words, but at my last school meeting in November i repeated them back to the therapist with the other teachers present , and she said "that was before i had the full picture"  !!  he has been making progress and all in the meeting agreed not worth referring him for a assesment i got the impression (although no one wants to commit) it was not worth "labelling" him as no more local goverment of facilities available near us to help so not worth it, he is improving with schools help alone.  although no playground assistant as school so small 28 pupils andthis is one of his biggest problem areas.

    I guess i am also scared to "label" my son and why give him that label if he will not get help,!  We live in a remote area in the highlands.

    My husband is convinced he also has the condition,we have been together twenty five years,! no family live near, i have no close friends and the stress of dealing with them both is unbearable at times!

    My son is happy and loving in our small family enviroment, dislikes change, getting things wrong, fussy eater, vert sensitive and bright but at school he barely speakes to his teachers seeks out friends at playtime but struggles to play unless on his terms and takes things literally, easily led.

    Can i get any help for my son privatly without him being labelled?  I am not against the label but ifthere really is nothing more they can do what is the point?  and yet as i type that a big part of me feels i really need to know for me as long as it will not harm my son.

    Sorry to go on, this site is my only means of getting it all off my chest and i think it shows!

    Thank you

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