New to the NAS and new to the forum and ANXIOUS!

Hi.  I am 42 and live with my husband and 16 year old daughter.  She is about to be assessed for Asperger syndrome, and I wish I could go through her experience for her.  Everyone expects and wants their children to be normal, but what is 'normal' exactly???!  I have known that since she could walk, that my daughter would have a strong mind of her own!  I said she will be running a school - my dad disagreed and said she would be running the country!!  To us, our daughter is who she is - we have accepted her as 'her', and she is different.  She is beautiful, a pleasure to take shopping (her favourite pastime!!), very talented, very clever, and she will do things in her own time and in her own way.  To others it is frustrating, but we have lived with it for the last 16 years, and to us it is normal.  All her mannerisms and OCD-like behaviour is endearing and we love her to bits.  This is the thing I regret most.  I should have taken notice of it and got it investigated, because now she is in her last GCSE year and is feeling very low and depressed and she hates being like it.  She is frustrated and is very negative about herself and her feelings.  I feel so guilty that I have failed her, and that if I had listened and taken notice of her more she would have been diagnosed earlier and got the help and support she needed before now.

I am glad I have found this website.  I am keen to share my experience with others.

Wink

Parents
  • hi - your love shines thru for your daughter.  We all feel guilty at times.  I can think of a number of things along the way that I cd have done better, but didn't.  I know there have been times I've unwittingly let my son down.  The thing is we learn as we go along because we're only human + humans make mistakes sometimes.  By rectifying something we move on + hopefully make things better.  There are a number of adults on the site who have been or are in the process of being assessed so it's worth reading their posts.  An assessment can clarify things for the person assessed + their family, I understand.  How does she feel about the assessment?

Reply
  • hi - your love shines thru for your daughter.  We all feel guilty at times.  I can think of a number of things along the way that I cd have done better, but didn't.  I know there have been times I've unwittingly let my son down.  The thing is we learn as we go along because we're only human + humans make mistakes sometimes.  By rectifying something we move on + hopefully make things better.  There are a number of adults on the site who have been or are in the process of being assessed so it's worth reading their posts.  An assessment can clarify things for the person assessed + their family, I understand.  How does she feel about the assessment?

Children
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