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Feeling lost

NAS65682

Hi, 

Last year I was diagnosed with Asperger's syndrome and to be honest I'm feeling so lost in myself. I've been put on some waiting lists but not 100% what there for, I'm waiting to hear back about an occupational therapist. I'm waiting to see my GP as its been a couple of months now and feel myself just getting more and more depressed and struggling with my anxiety too. I don't have any friends or family to talk to about this but I don't feel I can talk to family members about my diagnosis (I have told them about it though so they are aware). Although since telling my closest family members I feel I've been left too it on my own, I'm so confused about how to feel or even what to do with my diagnosis. Anyone have any advice??? Thanks in advance.

  • Hi,

    Please come and talk to us here on this forumn. It has good moderation and is lnked to NAS who have a wide experience specialising in autism of course. 

    ask anything, any time, dont worry if u make a fool of yourself, I do that all the time :)

    aidie 

  • NAS65682 said:
    I'm so confused about how to feel or even what to do with my diagnosis.

    Talking with other autistic adults on a forum is really helpful to process the diagnosis. The three video on this page really talk about different feelings and different phases one go through after diagnosis. I found that helpful even though I was diagnosed a while ago.  https://ndsa.uk/content/just-diagnosed-now-what/

  • Hello

    Following on from the helpful community responses you may like to contact our Autism Helpline team who can provide you with information and advice . You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor. Alternatively, should you prefer to send a message, you can do so via their webform:

    https://www.autism.org.uk/services/helplines/main/questions.aspx

    I hope you find this helpful.

    Best wishes

    Lorraine Mod

  • Hi! The pathway to getting support post diagnosis is not clear at all. I was diagnosed in December 2018 and I am still very much trying to navigate that pathway! One suggestion I would make is to find out if there are any Autism/Mental health advocacy services near you as they would be able to advise you what support you are entitled to and support you to get that support. 
    Regarding talking to people about what you are going through. I had found this forum to be a huge source of support since my own diagnosis, just being able to talk with people who have gone through similar experiences to myself has been really helpful. So keep posting and talking with people on here and hopefully that will bring you some solidarity and comfort.