31, Recently Diagnosed

Hi,

My name’s Tom and I need to unload following my diagnosis so apologies for the long message and feel free to skip by!

I am 31 and have recently been diagnosed with autism. I have experienced a lot of the same life patterns many others seem to with ASD i.e. dysfunctional relationships, short lived friendships, difficulty holding down jobs, anxiety, depression, excessive drinking, drugs etc. I was also raised a Jehovah’s Witness which compounded the problem of feeling isolated and alone due to its socially restrictive and exclusive nature and aversion to psychotherapy.

Since childhood I have experienced crippling anxiety and bouts of depression and until the last few years found it difficult just to step outside my front door. There have been periods where I have not left my house for weeks or months. This has been made worse by the fact my living situation has been extremely unstable throughout my life. I have been in the YMCA, shared accommodations, rooms above pubs… I have moved so many times I have lost count.

I stopped turning up to school in year 9. I would just spend all day walking the fields around school alone rather than be around other kids. I was treated like a trouble child at school and home. I frequently complained that I could not cope with the amount of noise in the classrooms and the teachers shouting etc but this was not taken seriously. I also struggled with bullying due to my quiet nature and my family’s religious orientation at the time. I cannot recall an occasion I was not anxious as a child. I have dropped out of 3 college courses and 1 university degree. I have also walked out of every job I have ever had until my current but I’ll explain that.

A few years ago, I was in a real bad place, in a tiny run-down apartment with a girlfriend who could not understand me and had her own mental health issues, I’d just walked out of another job and to be honest I’d had enough. I decided to turn to family for help. I moved in with my sister, my brother got me an interview at the same place he worked and life has slowly improved since then. I work in an office now, which has its own difficulties for me but since the diagnosis they have been very supportive in making changes to support me for which I am very grateful.

It is incredibly difficult to portray in a few paragraphs how difficult, painful, lonely and just plain awful it has been growing up with undiagnosed autism but I am sure the majority on here can relate.

Since the diagnosis I have become aware of how much I have been masking and how much that has affected my mental health and so I do not hide myself anymore (I already feel like a huge weight has been lifted from my shoulders). I am also not afraid to speak up for the support or changes I need to make my life easier. I know I have suffered enough regardless what anyone else thinks.  It is upsetting to know life could have been much different had I been diagnosed sooner, but there is always someone who has it worse and I know feeling sorry for myself won’t help anything.

Now I am just allowing myself to be me and not trying to behave like anyone else even if it seems weird. I will be trying to work with my autism instead of trying to hide it.

Apologies for the disjointed rant but I am lonely and as I said I needed to unload Blush

Thanks for reading,

Tom

Parents
  • Welcome to the community. Don't worry about your rant I think the majority of us like to get things off our chest.

    I too felt frustrated when I got my diagnosis as I wondered what life may have been like if I had been diagnosed earlier. Having said that I have no regrets in life.

    I did have one and I sorted that regret out last year when I decided to go to college and do my maths GCSE which I passed with a grade 4 and just missed out on a grade 5 doing the foundation tier with the rest of the students. I was happy with that considering I'd not done any maths coursework for over 20 years. It had always annoyed me when my teachers put my in the lowest tier for my exam when I was at high school and even the highest mark would not of gained a pass.

    Anyway I'm sure you'll find this website interesting and helpful as I do. It's nice to know there are people out there with similar problems and that we are not alone and that understand how we feel.

  • Thanks for the message. I hope I can also start to make positive progress in life now I know what the problem is.

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