Published on 12, July, 2020
hi there I’m new to this site... my 16 year old son was diagnosed on Friday... the struggles we have had since he was two years old have been awful... getting the diagnosis alone has been a very stressful journey, I had to take him out of school when he was 14 and I home educated him... were still trying to home educate now but are taking a break due to the diagnosis and letting him get his head around it... I just don’t understand what’s next... also I’m angry he has had to suffer most of his school life and being labelled the naughty kid... the support I’ve had lately has been pretty good just wish it was like that years ago so things could have been put in place for him and he could have completed school. Thanks for reading
Hello. My son was just diagnosed last week at 14. But no one is telling us what to do next! It has been a struggle ever since he went to school. He is still at mainstream school but his attendance is terrible and they treat us as a PROBLEM. We have struggled for years to get support and my son is so exhausted and stressed out all the time due to being misunderstood. School is a minefield - always something going wrong or getting in trouble. he feels like he is bad and will be punished. I just joined this site and found your post. I feel for you as it sounds like we are having a similar journey. Sometimes it helps to know there are other people out there with the same troubles. Take care.
Its so hard i feel your pain, when my family support worker (who has been amazing and i don't know where id be without her!) came round yesterday morning we sat there and cried... she cant believe how hes been treated and how different things could have been, all i can advise is keep pushing and to be honest all i know thats happening next is someone will be in touch... camhs visited us at home about 6 months ago and said "if he ever gets diagnosed" i flipped and said no if about it its WHEN, its sounds as if your us 2 years ago... go to the school and make sure they know he diagnosed, i did the right thing in taking him out as hes definitely less stressed, good luck and take care