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just a little bit about my boy<3

mummybear2008

Hi my name is Anna,

I have a little boy who is almost 4 and has recently been diagnosed with high functioning Autism, my partner and I had expected that this diagnosis would come for a while now but as with all parents and carers of children on the spectrum it was still a lot to come to terms with, I had what could only be described as a grieving period and for a few days it just didnt sink in ... the sadest thing i remember about the few days after his diagnosis, i was looking at him differently, always watching him, making sure i was there to help him every second, making sure he was okay, not letting him do much for himself,  it was like i forgot he was still my boy, my once little baby who is now growing up so fast i became very over protective ... i had to step back and let him be him, i realised that the diagnosis didnt change who he was infact it has helped us all to understand him more and has made me realise just how special he has always been.

Some days are harder than others but my boy still makes me smile the biggest smiles everyday he is the cutest most loving boy you could ever imagine and i am lucky enough to be his mummy <3 

  • Hello Amy,

     

    Thankyou for writting to me,

     Im happy for you that you finally got diagnosed with having high functioning autism, now you and your family can understand more about how you feel,

    Im sorry to hear that you went through such a bad time trying to get diagnosed it must of been very frustrating for you and hard to cope with,It's a shame that you didnt get diagnosed when you were younger then you could of got more help, there maybe some classes or groups you can go to now you have been diagnosed, i assume you have already been searching for groups to go to meet other people your age on the spectrum, please dont give up you are probably not the only person that has been diagnosed at a later age and i believe thier must be some help for you even though you are now 16, maybe you can try and contact that lady that said you shoud be tested maybe she can help you find somewhere to go.

    I hope you have a good family to support you

    I wanted to let you know that you writting back to me did help, it helped me alot, you have given me hope for my little boy, you seem to understand everything that is happenning and you also seem very grown up about the situation you are in and I didnt think that at 16 a person with asd could be so smart at understanding life and you also choose to reply to me and lastly the fact that you have gone through your whole school life in an ordinary school without any help is amazing. your family must be proud of you Amy.

    Thankyou very much

    from Anna

     

  • I know how you feel.

    I am 16 and have recently been diagnosed (hopefully deffinatly now!) as having High-Functioning Autism. I say hopefully definatly now because at first I was told It was 'just' autism and I 'scored on the spectrum' then they gave me a full title of 'Autism Spectrum Disorder'. Next (as I changed worker wich only made things worse) she thought I had Aspergers Syndrome. Then had to go and chek and we were told I deffinatly do not have that but then she did not say what I do have. Although, it has now been concluded by everyone that I have high-functioning autism. (and I can not spell functioning yet!) 

    I have struggled to come to tearms with this too. Before I was tested the person I used to have (who was amazing-she is the person that told me to have the test because she thought I have autism, she treated me like I did and I really liked her because she explaind everything clearly so I understood) explained all about what the test would mean. She also explained that she could not tell me about the test because part of it was that it was unexpected. But, what she explained is what could happen afterwards, like I could have lessons to help me with things, or go to activity groups. This made me a bit exited because I like outdoor activities.

    However, I was 15 years 11 months when I took the test and EVERY service in my area stoped when a person turned 16. They firstly said that I could get in anyway because I had only been diagnosed but they did not check with the services who said no. So, I was given this 'label' and then got nothing from it. 

    I know it's hard from my own experiences but as your son is almost 4 he is just the right age to start getting to go to these clubs and lesssons (or the equivilent where you live).  Make sure you make the most of him having being diagnosed so young to help him when he is older. 

    I hope all that helps you-even just a little bit. 
    Amy