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The start of Our Autism Journey

Natalie2607

Hi,

I am new to the site and am looking for other parents in a similar position to chat to!

My little boy is 2 next month and I have known since an early age we would be looking at a diagnosis of Autism. From a young age he has presented nearly all of the typical symptoms which have become more obvious as he has got older.

He is now going to be monitored by what his paediatrician called the Autism Umbrella team and we will hopefully have a formal diagnosis in around a years time.

He is such a happy and content little boy on the whole and we are grateful he is healthy.

I would love to know how other parents are coping - I on the whole am struggling. Although I have always known this was where we were headed it has still been difficult to accept when you hear the thoughts from a professional. I am trying to accept the new path which we now need to be on. I have heard other parents of Autistic children describe how they almost felt they needed to grieve the child they thought they would have. I think this is how I am feeling - although this makes me feel extremely selfish and guilty.

Just wondering if anyone else can share their thoughts and feelings - it would be appreciated :)  

Parents

  • Hi Kirbz,

    Thank you so much for your reply, I appreciate it so much. It sounds like you have had a tough time and not much support for years. I am glad you have got the diagnosis and hopefully you can get much more help and support for your little boy.

    Its nice to know others feel the same as me as sometimes as a parent it can feel very lonely. Being a first time Mum is hard anyway but to be a first time Mum with an Autistic child is very daunting. 

    I understand exactly when you said even though you already knew it was hard to hear. I think at every point you are expecting someone to turn around and say 'oh no, actually what you thought was wrong'. Although I wouldn't change my little boy I worry he is going to miss out on things other children would experience and that breaks my heart. I also think it is still all new to me and I am not sure how his future will look at the moment. 

    If you want to talk any more please email me directly as it would be great to have another Mum to talk to. - [email address deleted by moderator]

    Thanks so much for your reply - Natalie xxx 

Reply

  • Hi Kirbz,

    Thank you so much for your reply, I appreciate it so much. It sounds like you have had a tough time and not much support for years. I am glad you have got the diagnosis and hopefully you can get much more help and support for your little boy.

    Its nice to know others feel the same as me as sometimes as a parent it can feel very lonely. Being a first time Mum is hard anyway but to be a first time Mum with an Autistic child is very daunting. 

    I understand exactly when you said even though you already knew it was hard to hear. I think at every point you are expecting someone to turn around and say 'oh no, actually what you thought was wrong'. Although I wouldn't change my little boy I worry he is going to miss out on things other children would experience and that breaks my heart. I also think it is still all new to me and I am not sure how his future will look at the moment. 

    If you want to talk any more please email me directly as it would be great to have another Mum to talk to. - [email address deleted by moderator]

    Thanks so much for your reply - Natalie xxx 

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