The start of Our Autism Journey

Hi,

I am new to the site and am looking for other parents in a similar position to chat to!

My little boy is 2 next month and I have known since an early age we would be looking at a diagnosis of Autism. From a young age he has presented nearly all of the typical symptoms which have become more obvious as he has got older.

He is now going to be monitored by what his paediatrician called the Autism Umbrella team and we will hopefully have a formal diagnosis in around a years time.

He is such a happy and content little boy on the whole and we are grateful he is healthy.

I would love to know how other parents are coping - I on the whole am struggling. Although I have always known this was where we were headed it has still been difficult to accept when you hear the thoughts from a professional. I am trying to accept the new path which we now need to be on. I have heard other parents of Autistic children describe how they almost felt they needed to grieve the child they thought they would have. I think this is how I am feeling - although this makes me feel extremely selfish and guilty.

Just wondering if anyone else can share their thoughts and feelings - it would be appreciated :)  

Parents
  • Hi Clovis, 

    I really appreciate your reply and the link is great so thank you for that. I have had a good read and it's good to get another perspective.

    I wouldn't want you to think that I regret my little boy at all or that I grieve for who he is. I don't.  As a first time Mum who suffers from anxiety my worries overtake my mind and I worry; will he miss out on anything, will he be happy etc. I worry about things out of my control as such and I worry about things I'm not even sure I need to worry about yet. 

    As I said in previous post, he is happy and healthy and as a parent that is all you can ask for.

Reply
  • Hi Clovis, 

    I really appreciate your reply and the link is great so thank you for that. I have had a good read and it's good to get another perspective.

    I wouldn't want you to think that I regret my little boy at all or that I grieve for who he is. I don't.  As a first time Mum who suffers from anxiety my worries overtake my mind and I worry; will he miss out on anything, will he be happy etc. I worry about things out of my control as such and I worry about things I'm not even sure I need to worry about yet. 

    As I said in previous post, he is happy and healthy and as a parent that is all you can ask for.

Children
No Data