Traumagenic quasi autism? Failed 1st assessment

I had my initial assessment yesterday and was extremely surprised not to pass it. The assessor said that none of the screening tests count because of my childhood trauma and he was only interested in the triad of impairment. His argument was that I was interacting well with my close friend who I bought with me, that I can produce art (as long as I am given set parameters o work within) and my interests are not narrow enough.  I stupidly didn't mention the one compute game I've been playing for 15 years or the special interests I've carried from childhood. 

Basically I got super nervous and went into autopilot "social" mode. I've been perfecting my act for 30 years and spent a whole year in inpatient mental health rehab literally learning how people communicate. I was taught to fake it to make it and I've stidied the vocal inflections people use, make sure to listen and not butt in etc. I've had plenty of chatty interactions with diagnosed artistic people and I'm very confused.  

The thing is, my childhood trauma wasn't that severe or that early. This dosent explain why my parents called me "baby glum" because I didn't do facial expressions. It dosent explain the physical stuff like stimming and IBS and migraines and extreme clumsiness which we never got as far as discussing because my act was too slick. 

 A few days before I had an hour log mental health assessment without a friend there and that assessor felt I almost certainly did have AS.

I'm open minded and had a look at papers on Traumagenic quasi autism and it's all about very young children with extreme trauma.

From my reading the people I most relate to are those with atypical autism. I'm so confused now I feel like my diagnosis of PTSD will preclude me from ever getting an autism diagnosis and not sure whether to go for a 2nd opinion or just stay "self diagnosed" because the only people who share my life experience are those with atypical aspergers. 

Id appreciate any advice or opinions. I'm open minded that I could be wrong but this has raised more questions than it answers. If I'm not autistic why is my brain like this !

Parents
  • Hazelspoon said:
    the earliest traumatic memories I can identify is my mother berating me for having "no social skills" and other kids excluding me and mocking me for my precocious speech and odd demeanour.

    Not relevant at all to a quasi-autism diagnosis, which would require you to be unloved in your early years - but very relevant to a female-type AS diagnosis.  (I personally knew a Romanian ex-orphan very well.  Her autistic traits were very like my own apart from disinhibited attachment - which is characteristic of quasi-autism.  She wasn't ill-treated, but there were so many children and so few staff that she had no attachment figure, and would attach to any adult who showed her affection).  So I've no idea how he worked out that you had QA!

    I have so much stuff that simply is not a symptom of PTSD. The way my brain constantly repeats snatches of music or speech and I have to sleep with the radio on to drown it out.   the love of shiny things, the feeling when I'm in a room full of people that is like nails down a blackboard...

    I can identify with all of these, except sleeping with the radio on for I'm too tired (I've always had a nightlight though).  With me the snatches of music repeat during the day, especially if out walking alone.  Often the same music.  I collect like a magpie - crystals, rings, marbles, little coloured glass animals, hang shiny things in the windows, etc.   I've had these traits all my life.  I often wear Roma-type long skirts with shiny bits in them.  I hate walking into a room full of people, and the way they all turn to look at me.  Aaargh!  This happened recently.  I walked in, heard all the voices jumbled together, went all panicky, and got out quick.  I just couldn't face it.  All this is pretty autistic.

    I don't get it. If he's autistic and very intelligent and can spot where I do or don't miss a social cue, then surely another autistic person is capable of learning these things!

    I don't get it either.  Sometimes I even wonder if these people are being paid to fob off as many women with autism as possible.  Male gatekeeping, hmm, maybe.

    So you're into 'male' stuff.  Yes that could explain the way he acted.  I have very many interests, half of them could be seen as 'male' type interests - such as radio & electronics.  I used to draw endless complex circuits as a child, and built a valve radio transmitter at 13, and ran a pirate radio station.  Males were certainly very impressed!  This is so autistic too. 

    Did you know that EDS is closely linked to autism?    planetautismblog.wordpress.com/.../ 

    Yet another clue!  It all adds up to me.

    I'm so tired of having these soul bearing assessments and keep getting knocked back.

    I know the feeling.  This happens far too often, and it shouldn't.  Training of most MH professionals in autism is abysmal.

    I feel like I'll be offending the assessor personally and  might bump into him when I have my trauma therapy. Awkward!

    I get like this (same building) but I've come to realise that offending people who misdiagnose is a non-issue when getting an accurate diagnosis is concerned. It's like taking a watch back to the repairers because it still doesn't work. It's their fault they're not up to the job, not yours for 'offending' them. It's difficult when these people appear to be nice people, but even so it's your life that they're playing with.

    Yes, it is exhausting - and we Aspies easily get exhausted. The drop-out rate must be high, and we know the misiagnosis rate is sky high too.  I think the NAS should be doing more for women on the spectrum. If there's no local self-help group, it might be worth you and your new friend setting one up, as I'm doing, for there's a growing need for them - especially with support services being cut.

Reply
  • Hazelspoon said:
    the earliest traumatic memories I can identify is my mother berating me for having "no social skills" and other kids excluding me and mocking me for my precocious speech and odd demeanour.

    Not relevant at all to a quasi-autism diagnosis, which would require you to be unloved in your early years - but very relevant to a female-type AS diagnosis.  (I personally knew a Romanian ex-orphan very well.  Her autistic traits were very like my own apart from disinhibited attachment - which is characteristic of quasi-autism.  She wasn't ill-treated, but there were so many children and so few staff that she had no attachment figure, and would attach to any adult who showed her affection).  So I've no idea how he worked out that you had QA!

    I have so much stuff that simply is not a symptom of PTSD. The way my brain constantly repeats snatches of music or speech and I have to sleep with the radio on to drown it out.   the love of shiny things, the feeling when I'm in a room full of people that is like nails down a blackboard...

    I can identify with all of these, except sleeping with the radio on for I'm too tired (I've always had a nightlight though).  With me the snatches of music repeat during the day, especially if out walking alone.  Often the same music.  I collect like a magpie - crystals, rings, marbles, little coloured glass animals, hang shiny things in the windows, etc.   I've had these traits all my life.  I often wear Roma-type long skirts with shiny bits in them.  I hate walking into a room full of people, and the way they all turn to look at me.  Aaargh!  This happened recently.  I walked in, heard all the voices jumbled together, went all panicky, and got out quick.  I just couldn't face it.  All this is pretty autistic.

    I don't get it. If he's autistic and very intelligent and can spot where I do or don't miss a social cue, then surely another autistic person is capable of learning these things!

    I don't get it either.  Sometimes I even wonder if these people are being paid to fob off as many women with autism as possible.  Male gatekeeping, hmm, maybe.

    So you're into 'male' stuff.  Yes that could explain the way he acted.  I have very many interests, half of them could be seen as 'male' type interests - such as radio & electronics.  I used to draw endless complex circuits as a child, and built a valve radio transmitter at 13, and ran a pirate radio station.  Males were certainly very impressed!  This is so autistic too. 

    Did you know that EDS is closely linked to autism?    planetautismblog.wordpress.com/.../ 

    Yet another clue!  It all adds up to me.

    I'm so tired of having these soul bearing assessments and keep getting knocked back.

    I know the feeling.  This happens far too often, and it shouldn't.  Training of most MH professionals in autism is abysmal.

    I feel like I'll be offending the assessor personally and  might bump into him when I have my trauma therapy. Awkward!

    I get like this (same building) but I've come to realise that offending people who misdiagnose is a non-issue when getting an accurate diagnosis is concerned. It's like taking a watch back to the repairers because it still doesn't work. It's their fault they're not up to the job, not yours for 'offending' them. It's difficult when these people appear to be nice people, but even so it's your life that they're playing with.

    Yes, it is exhausting - and we Aspies easily get exhausted. The drop-out rate must be high, and we know the misiagnosis rate is sky high too.  I think the NAS should be doing more for women on the spectrum. If there's no local self-help group, it might be worth you and your new friend setting one up, as I'm doing, for there's a growing need for them - especially with support services being cut.

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