My fiancé has Asperges syndrome. Now what?

Dear All,

My fiancé has recently been officially been diagnosed with Asperges syndrome, we are both in our early 20s. I love him dearly ,but, there are times when his condition has put a strain on us as a couple.  I have completed extensive research into Asperges due to the diagnoses ,but, also out of personal interest. He has it very mild compared to others I have met with the same condition.

I was wondering what advice and support is given for young couples? Who do we need to contact etc?  Also, is anyone in a similar situation?  

Any advice would be much appreciated. 

Parents
  • I would strongly advise you and your fiance to gather as much info as you can and sit down together and read and discuss it. I am lucky that my boyfriend has a son with AS. He is completely aware of my 'symptoms' and never hesitates to ask I'm pissed off with him , or am I having an Aspie moment when I seem distant or anxious.

    He doesn't take things personally if I need to shutdown and not see him.

    Open discussion and understanding are VITAL here. Let him tell you what things/situations/ sensations trigger his anxiety and encourage him to talk to you when these occur. That way you can help avoid them or deal with them if you can.

    I hope this helps.

Reply
  • I would strongly advise you and your fiance to gather as much info as you can and sit down together and read and discuss it. I am lucky that my boyfriend has a son with AS. He is completely aware of my 'symptoms' and never hesitates to ask I'm pissed off with him , or am I having an Aspie moment when I seem distant or anxious.

    He doesn't take things personally if I need to shutdown and not see him.

    Open discussion and understanding are VITAL here. Let him tell you what things/situations/ sensations trigger his anxiety and encourage him to talk to you when these occur. That way you can help avoid them or deal with them if you can.

    I hope this helps.

Children
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