struggling to come to terms

hey everyone i am new to this so please bare with me :),

me and my lil boy was at the health visitor today discussing lucas and his traits such as

  • lines up cars tantrums if the line is broken
  • lies down and roles the car watching the wheels
  • majorly fussy eater and if it something he doesnt want have to give him warning a few hours before he gets it for him to eat it or he will just refuse to eat it 
  • always tripping up when walking 
  • not a great liker of water
  • if i ask him to go and do something he will wont do it and play with his car
  • if we go out need to give him notice before hand cant be spare of the moment thing and when were out a car has to come with him
  • talking to him he will look elsewhere
  • also when broken out of routine he chucks a major tantrum kicking screaming hitting

the health visitor never actually it was autism but she has aranged the the speach and language therapist to meet lucas, has anyone else had this situation

Parents
  • hi, thought id share my story with you.  We have some similarities.

    My son is 11 now but was diagnosed as having autism when he was 5.  I have to say i noticed something "not quite right" from a young age. as a baby he loved nothing better than building his stacking cups in the right order starting biggest to smallest then he would turn them upside down and do it smallest to biggest, he would do this for hours.  He was delayed in speech and walking but as he had been premature so i always put it down to that.

    His thing was scooby doo and tigers when he was little they went everywhere with him, now being 11 he has progressed onto his ipod! lol but he keeps his tiger and scooby doo in his bed just for reassurance.

    My son is a complete stickler for routine, but i have to say he is getting  slightly better at routine changes as long as they are small ones....school holidays are a nightmare because he likes the routine of school.  We use lots of visual aids and he responds well to these.

    my sons tantrums are loud very vocal and sometimes violent.  He has no sense of danger.

    Eating: he has me demented with this!!! he lives on weetabix for brekkie, tortilla wraps and yoghurt for lunch and tinned pasta for dinner all day every day and its the one thing ive never been able to change in him.

    Ive been lucky in that my son got 1-1 support in an additional support needs class and they have been excellent with him.  Weve had various help over the years from speech therapists etc all of which has been helpful.

    My first piece of advise is if u have concerns then go straight to your GP.  they should refer you on to a paediatrician who would give the diagnosis or refer you on to a specialised unit for diagnosis.

    my second piece of advice is dont give up.  The process is lengthy and frustrating, and sometimes u feel like ur smashing your head on a brick wall, but keep on at them, you know your son best and if u have a niggling doubt then best get an expert to check him out.  

    Hope that was a bit helpful i realise i ranted on a bit! and dont get me wrong for every one thing id love to change about my boy theres about 15 i wouldnt change for the world, he can be the most loving and sweet boy and he gives the best hugs in the world! :-)

    good luck xxxxxx

Reply
  • hi, thought id share my story with you.  We have some similarities.

    My son is 11 now but was diagnosed as having autism when he was 5.  I have to say i noticed something "not quite right" from a young age. as a baby he loved nothing better than building his stacking cups in the right order starting biggest to smallest then he would turn them upside down and do it smallest to biggest, he would do this for hours.  He was delayed in speech and walking but as he had been premature so i always put it down to that.

    His thing was scooby doo and tigers when he was little they went everywhere with him, now being 11 he has progressed onto his ipod! lol but he keeps his tiger and scooby doo in his bed just for reassurance.

    My son is a complete stickler for routine, but i have to say he is getting  slightly better at routine changes as long as they are small ones....school holidays are a nightmare because he likes the routine of school.  We use lots of visual aids and he responds well to these.

    my sons tantrums are loud very vocal and sometimes violent.  He has no sense of danger.

    Eating: he has me demented with this!!! he lives on weetabix for brekkie, tortilla wraps and yoghurt for lunch and tinned pasta for dinner all day every day and its the one thing ive never been able to change in him.

    Ive been lucky in that my son got 1-1 support in an additional support needs class and they have been excellent with him.  Weve had various help over the years from speech therapists etc all of which has been helpful.

    My first piece of advise is if u have concerns then go straight to your GP.  they should refer you on to a paediatrician who would give the diagnosis or refer you on to a specialised unit for diagnosis.

    my second piece of advice is dont give up.  The process is lengthy and frustrating, and sometimes u feel like ur smashing your head on a brick wall, but keep on at them, you know your son best and if u have a niggling doubt then best get an expert to check him out.  

    Hope that was a bit helpful i realise i ranted on a bit! and dont get me wrong for every one thing id love to change about my boy theres about 15 i wouldnt change for the world, he can be the most loving and sweet boy and he gives the best hugs in the world! :-)

    good luck xxxxxx

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