struggling to come to terms

thanks for the advice guys, as of yet no sign of when the language and speech therapist will meet with lucas yet but the hv has made another appt to come to the hosue on 21st to see lucas i dont know yet what exactly for, i will arrange with the doctors for appt this week if i can seems impossible to get an appt at my doctors xx

hi i got straight in touch with my nearest child develpoment centre, and asked if some one could come out to assess my son, 1week later i had a visit, they reffured my son to be assessed their for 3 days a week, i no what my son had i just couldent come to tearms, only to find out it was autisum, have a look in your phone book, it will give you the number, they are so nice to talk to they do see you very qrickly

hi thanks for the reply no havent went to my gp just to my health visitor should i go to them aswell or wouldnt the health visitor pass on the notes ? sorry i seem in a daze just dont know what to do at the minute xx

my son was also three weeks early and was late at walking 18 months before he started health visitor asked me this and she said that is normal but i didnt think so, reading your story made me realise he use to always take is iggle piggle everywhere when he was a baby then it went onto a steering wheel from the wii and now its a car has to, my little boy thing is cars i feel like it soothes him, he is at nursery and before i started i think i told him everyday for three months before he started he going to nursery to get him use to the idea and on his first day he had to have a car with him and go down the chute before he leaves which he does now everytime before he if not he gets upset loud and violent

with eating lucas is cheerios for breakfast toast for dinner and sausages for tea

when he was younger if he got angry he use to try and hit his head of the floor and if i tried to stop him he wouldnt give up untill he did it not its turn to just hitting

ive never thought my little boy would have autism or if it even is this because health visitor hasnt suggested this or he hasnt been diagnosed yet but my head is really just a mess with it now and hopefully havent got to wait long on the speach and language therapist visit happens

thansk for sharing your story it helps :) xx

Hello mummytoastar

Welcome to the community. Sorry to hear about your concerns - it's good you've got your health visitor involved.

I just thought I would add a link here to the section of the website about autism. You might be interested in the sections "What is autism?" and possibly "Diagnosis" if it's felt that an assessment is needed.

http://www.autism.org.uk/about-autism.aspx

I hope you'll find this information useful and hopefully our users will also be able to help here.

Good luck.

Sandra - mod

hi, thought id share my story with you.  We have some similarities.

My son is 11 now but was diagnosed as having autism when he was 5.  I have to say i noticed something "not quite right" from a young age. as a baby he loved nothing better than building his stacking cups in the right order starting biggest to smallest then he would turn them upside down and do it smallest to biggest, he would do this for hours.  He was delayed in speech and walking but as he had been premature so i always put it down to that.

His thing was scooby doo and tigers when he was little they went everywhere with him, now being 11 he has progressed onto his ipod! lol but he keeps his tiger and scooby doo in his bed just for reassurance.

My son is a complete stickler for routine, but i have to say he is getting  slightly better at routine changes as long as they are small ones....school holidays are a nightmare because he likes the routine of school.  We use lots of visual aids and he responds well to these.

my sons tantrums are loud very vocal and sometimes violent.  He has no sense of danger.

Eating: he has me demented with this!!! he lives on weetabix for brekkie, tortilla wraps and yoghurt for lunch and tinned pasta for dinner all day every day and its the one thing ive never been able to change in him.

Ive been lucky in that my son got 1-1 support in an additional support needs class and they have been excellent with him.  Weve had various help over the years from speech therapists etc all of which has been helpful.

My first piece of advise is if u have concerns then go straight to your GP.  they should refer you on to a paediatrician who would give the diagnosis or refer you on to a specialised unit for diagnosis.

my second piece of advice is dont give up.  The process is lengthy and frustrating, and sometimes u feel like ur smashing your head on a brick wall, but keep on at them, you know your son best and if u have a niggling doubt then best get an expert to check him out.  

Hope that was a bit helpful i realise i ranted on a bit! and dont get me wrong for every one thing id love to change about my boy theres about 15 i wouldnt change for the world, he can be the most loving and sweet boy and he gives the best hugs in the world! :-)

good luck xxxxxx