My boy yet to be diagnosed and still in shock

Hi all

I'm new to this forum so Hello :)

I ignorantly thought I would never come across possible Autism with my baby boy.

My partner's 13 year old son has autism. I wanted a child of my own and after reading a theory that Autism can only be genetically linked to the mother, didn't think me and my partner would have an autistic child as there is no history of it on my side.

This theory could now have been blown out of the water completely OR I do actually carry the faulty gene - I will never know. Anyone ever heard of this theory or know any truth behind it?

Anyway, my boy is now 19 months old, and after a trip to A&E (he wouldn't wake up!), the doctor was worried about him not talking and referred him to paediatrics. They are concerned he doesn't point, pretend play or speak yet and will see him again in 2 to 3 months time.

I wasn't concerned. He was just my baby boy who is happy with life and I had no worries. - Until I started to look at other 19 month old children. It then came crashing down on me how far behind he is. I had no idea. I also looked at the signs to look out for for autism and he has so many of them it left me devastated and shocked. It stupidly left me feeling someone had taken him away and replaced him with another baby. I am so upset for him, not for myself. Like any mother I wanted him to have a happy and normal life. I know he still can but it is still sinking in.

I was wondering if you could look at some of his traits and let me know if your child had the same? (He is 19 months old)

Does not point at things he wants

Does not look at what I am pointing to

Does not understand sentences or instructions

Does not speak or say any words, just babbles and squeeks

Spin around in circles on his bum, looking to one side

Does not walk but bum shuffles

Doesn't like strangers - shuts eyes and pushes them away

Does not kiss or cuddle me (though used to cuddle)

Screams and cries hysterically in shopping centres

Throws tantrums when told "no"

Rocks on the sofa

Eats a bland diet and can sometimes refuse to eat (though he used to eat anything)

Hates loud noise and puts fingers in ears

Leads my hand to things

Obssessed with adverts on the TV

Won't have a book read to him

No role playing at all (likes buttons, sounds and lights toys)

Repetitively puts things in a bucket or moves clothes on the floor from side to side

Regularly constipated (which I have heard can be more likely with autism)

Good things:

He seems so happy

He smiles at me and laughs a lot

Sleeps through the night

Is not violent at all

Looks to me when he is hurt and crying

Responds to "come here" (I think)

Looks at me when I call his name

Copies mouth sounds

Can drink from a beaker and feed himself finger foods

Loves his autistic older brother

So I guess I am wondering if this all means he definitely has autism. I really want to get on and try to help him because I know it will take months for a diagnosis and some professional help.

xxxx

Parents
  • Well, I forgot all about my comment posted on here. My son is now 2 1/2 and thought I'd give an update. He was diagnosed with Autism earlier this month after having an assessment, and he has just started going to a special nursery part-time, which he loves! I was upset at the diagnosis but had already had loads of time to come to terms with it over the past year, so wasn't too bad. We have been through some difficult moments, bad tantrums and so on, but he is showing signs of improvement. He cannot communicate through speech still and this is to be worked on, but he is saying some words, knows what things are called and can point to what he wants. He has finally mastered walking, though sometimes a little clumsy! He seems to trust me a little more in new and confusing situations and doesn't blind panic. He has become very clingy to me and usually needs to know where I am. Going to work in the morning just devastates him! :( He is more affectionate now already and will come up and give my legs a big bear hug or will lean in for a kiss on his head. He has also developed a wicked mischeviousness about him. He loves to laugh, play and be read books to. His obsession is with numbers. He can count to 30 and type beyond that on the computer. He plays games on my mobile phone. His eating has become difficult and he'll only eat certain things that he knows he likes. New things are not taken so well. But I love him more than anything in this world and he's my little angel. It is only other people's perception of the disability that can make us feel hard-done-to. If we just look at the child we have been given for who he is, nothing else matters.

Reply
  • Well, I forgot all about my comment posted on here. My son is now 2 1/2 and thought I'd give an update. He was diagnosed with Autism earlier this month after having an assessment, and he has just started going to a special nursery part-time, which he loves! I was upset at the diagnosis but had already had loads of time to come to terms with it over the past year, so wasn't too bad. We have been through some difficult moments, bad tantrums and so on, but he is showing signs of improvement. He cannot communicate through speech still and this is to be worked on, but he is saying some words, knows what things are called and can point to what he wants. He has finally mastered walking, though sometimes a little clumsy! He seems to trust me a little more in new and confusing situations and doesn't blind panic. He has become very clingy to me and usually needs to know where I am. Going to work in the morning just devastates him! :( He is more affectionate now already and will come up and give my legs a big bear hug or will lean in for a kiss on his head. He has also developed a wicked mischeviousness about him. He loves to laugh, play and be read books to. His obsession is with numbers. He can count to 30 and type beyond that on the computer. He plays games on my mobile phone. His eating has become difficult and he'll only eat certain things that he knows he likes. New things are not taken so well. But I love him more than anything in this world and he's my little angel. It is only other people's perception of the disability that can make us feel hard-done-to. If we just look at the child we have been given for who he is, nothing else matters.

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