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My boy yet to be diagnosed and still in shock

RowansMum

Hi all

I'm new to this forum so Hello :)

I ignorantly thought I would never come across possible Autism with my baby boy.

My partner's 13 year old son has autism. I wanted a child of my own and after reading a theory that Autism can only be genetically linked to the mother, didn't think me and my partner would have an autistic child as there is no history of it on my side.

This theory could now have been blown out of the water completely OR I do actually carry the faulty gene - I will never know. Anyone ever heard of this theory or know any truth behind it?

Anyway, my boy is now 19 months old, and after a trip to A&E (he wouldn't wake up!), the doctor was worried about him not talking and referred him to paediatrics. They are concerned he doesn't point, pretend play or speak yet and will see him again in 2 to 3 months time.

I wasn't concerned. He was just my baby boy who is happy with life and I had no worries. - Until I started to look at other 19 month old children. It then came crashing down on me how far behind he is. I had no idea. I also looked at the signs to look out for for autism and he has so many of them it left me devastated and shocked. It stupidly left me feeling someone had taken him away and replaced him with another baby. I am so upset for him, not for myself. Like any mother I wanted him to have a happy and normal life. I know he still can but it is still sinking in.

I was wondering if you could look at some of his traits and let me know if your child had the same? (He is 19 months old)

Does not point at things he wants

Does not look at what I am pointing to

Does not understand sentences or instructions

Does not speak or say any words, just babbles and squeeks

Spin around in circles on his bum, looking to one side

Does not walk but bum shuffles

Doesn't like strangers - shuts eyes and pushes them away

Does not kiss or cuddle me (though used to cuddle)

Screams and cries hysterically in shopping centres

Throws tantrums when told "no"

Rocks on the sofa

Eats a bland diet and can sometimes refuse to eat (though he used to eat anything)

Hates loud noise and puts fingers in ears

Leads my hand to things

Obssessed with adverts on the TV

Won't have a book read to him

No role playing at all (likes buttons, sounds and lights toys)

Repetitively puts things in a bucket or moves clothes on the floor from side to side

Regularly constipated (which I have heard can be more likely with autism)

Good things:

He seems so happy

He smiles at me and laughs a lot

Sleeps through the night

Is not violent at all

Looks to me when he is hurt and crying

Responds to "come here" (I think)

Looks at me when I call his name

Copies mouth sounds

Can drink from a beaker and feed himself finger foods

Loves his autistic older brother

So I guess I am wondering if this all means he definitely has autism. I really want to get on and try to help him because I know it will take months for a diagnosis and some professional help.

xxxx

Parents

  • Hi there, my son is 19 months old, and as a pre-school assistant i noticed autism signs way before it was noticed by anybody. When my son was in for his 12 month check with health visitor i identified some worries, for example, he wouldnt respond to his name, so we thought maybe his hearing wasnt right, we banged chairs on tables etc and he still didnt respond, but then i showed her something, when i play his favourite song on my phone (not to loud or quiet) he smiled and turned his head, this confused the health visitor so she put him in for a hearing test, hearing test was ok even though he always seems to suffer with ear infections, but still more charcteristics were developing , like repeating where he would put hoops on his thumb and tip them to fall on the floor then pick them up again to repeat, he has a very high pitch squeal, he doesnt want to play, hardly any interaction or eye contact..anyway the lady from the hearing test said to come back and she will have the peaditrician in next time...so at 18 months we went back in for another hearing test, which he wont sit down for long so difficult to do, the peaditrician was in there and he asked me how i knew what my son wanted, my answer was "motherely instinct" he doesnt point or tell me what he wants, he then asked me to pick my son up and say goodbye and leave the room for a second, which i done, and he didnt acknowledge me leaving or coming back, they also asked to take the toys away from my son, but he screamed, so they gave him one of the hoops but carried on screaming (which i knew why) and i said he has to carry 2 of things, so as soon as they gave him another hoop he stopped crying....after this appointment i have had a letter to say 'possible autism'..he has another hearing test in feb so gonna wait to see what happens then..i also work in a setting with an autistic child so i know what to expect and i know that there is alot of help and guidance out there, ...have a lovely xmas peeps xxxxx

Reply

  • Hi there, my son is 19 months old, and as a pre-school assistant i noticed autism signs way before it was noticed by anybody. When my son was in for his 12 month check with health visitor i identified some worries, for example, he wouldnt respond to his name, so we thought maybe his hearing wasnt right, we banged chairs on tables etc and he still didnt respond, but then i showed her something, when i play his favourite song on my phone (not to loud or quiet) he smiled and turned his head, this confused the health visitor so she put him in for a hearing test, hearing test was ok even though he always seems to suffer with ear infections, but still more charcteristics were developing , like repeating where he would put hoops on his thumb and tip them to fall on the floor then pick them up again to repeat, he has a very high pitch squeal, he doesnt want to play, hardly any interaction or eye contact..anyway the lady from the hearing test said to come back and she will have the peaditrician in next time...so at 18 months we went back in for another hearing test, which he wont sit down for long so difficult to do, the peaditrician was in there and he asked me how i knew what my son wanted, my answer was "motherely instinct" he doesnt point or tell me what he wants, he then asked me to pick my son up and say goodbye and leave the room for a second, which i done, and he didnt acknowledge me leaving or coming back, they also asked to take the toys away from my son, but he screamed, so they gave him one of the hoops but carried on screaming (which i knew why) and i said he has to carry 2 of things, so as soon as they gave him another hoop he stopped crying....after this appointment i have had a letter to say 'possible autism'..he has another hearing test in feb so gonna wait to see what happens then..i also work in a setting with an autistic child so i know what to expect and i know that there is alot of help and guidance out there, ...have a lovely xmas peeps xxxxx

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