Newly diagnosed.

Harrysbatmum said:

After what seems like a life time, in reality 12 months we have a diagnosis for our 4 year old son. We found out yesterday so I'm feeling very lost. I know this doesn't change our funny, intelligent & loving little man. 

I'm relieved we have some answers & can get support for our little man at school in September. On the other hands I feel incrediably guilty, have I done something to cause this, could I have done something differently? What will the diagnosis mean for him, have we set him up for a difficult life? 

Can people advise me on what to do now? We've been told to arrange his DLA etc but what can de physically do? Family life is complicated his paternal grandfather lives with us & has dementia, as well as a 2 year old sister. 

Any help would be appreciated I'm not as okay as I thought.

Hi, We are sort of at the same stage with our 4 year old, just awaiting the final diagnosis. We have decided with the school to keep him in the nursery in September with perhaps a gradual introduction to reception class. I too am wondering what the future holds, it's obviously a huge concern for anyone, I think it's too early to say where he'll be next year, let alone in 10 years or so. Our son is also one of the happiest little boys you will ever meet, I don't think he has any idea what is really going on. As for the causes, there are some theories as to cause but nothing proven at all so you shouldn't blame yourself, it's one of those things that can happen.

Harrysbatmum said:

After what seems like a life time, in reality 12 months we have a diagnosis for our 4 year old son. We found out yesterday so I'm feeling very lost. I know this doesn't change our funny, intelligent & loving little man. 

I'm relieved we have some answers & can get support for our little man at school in September. On the other hands I feel incrediably guilty, have I done something to cause this, could I have done something differently? What will the diagnosis mean for him, have we set him up for a difficult life? 

Can people advise me on what to do now? We've been told to arrange his DLA etc but what can de physically do? Family life is complicated his paternal grandfather lives with us & has dementia, as well as a 2 year old sister. 

Any help would be appreciated I'm not as okay as I thought.

Hi, We are sort of at the same stage with our 4 year old, just awaiting the final diagnosis. We have decided with the school to keep him in the nursery in September with perhaps a gradual introduction to reception class. I too am wondering what the future holds, it's obviously a huge concern for anyone, I think it's too early to say where he'll be next year, let alone in 10 years or so. Our son is also one of the happiest little boys you will ever meet, I don't think he has any idea what is really going on. As for the causes, there are some theories as to cause but nothing proven at all so you shouldn't blame yourself, it's one of those things that can happen.