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Assessment worries

Lollipop

Hi, I'm new here. Just looking for a bit of advice/opinion.

I went to my GP about a two years ago about my ASD symptoms and was referred to AMHS. The nurse there labelled me with a provisional diagnosis of a personality disorder, but failed to take into account many of my other symptoms. My partner helped to form a complaint and I was then referred to the autism diagnostic service in my area. I have been waiting for NHS funding for my assessment for over a year and finally it has come through. 

Now I'm really worried about it. I'm fearful that because I have learnt to cope with my daily struggles and mask them (being a woman), that I won't get a diagnoses of ASD. I feel like each day I have to pretend to be someone I am not. I almost feel as if I don't know what the real me is anymore.

I worried that I'll be labelled with a personality disorder and that the pyschologist won't take the whole picture into account. I will only have my partner with me and not my parents.

The fact that I may be given a ASD diagnosis worries me equally. I'm worried that it will effect my future job prospects or having children.

I just want to understand myself. Am I doing the right thing going for this?

Parents

  • Hi Matt, 

    Thank you for your reply.

    I thought they would be able see through that, but I'm worried about getting someone inexperienced like the first nurse I saw and being labelled as having a personality disorder, I really want to be myself. But to be honest I don't quite know who I am anymore.

    In relation to jobs- I enjoy working with children but it has been suggested to me from my initial AMHS consultation that because I have worked with children and the fact that these jobs requires high levels of interaction and therefore I cannot be ASD. Which is the complete reason they refused to refer me for an ASD assessment and labelled me with a personality disorder. I just worry because of my history of working with children that it will go against me (I had to explain that although I enjoy it, I really do struggle!)

    I don't mind that one day my children may have ASD, I am just worried that being given the diagnosis, could this mean that I am not a capable parent? Moreso than someone not on the spectrum?

    So many queries and worries, pros and cons going through my head.

Reply

  • Hi Matt, 

    Thank you for your reply.

    I thought they would be able see through that, but I'm worried about getting someone inexperienced like the first nurse I saw and being labelled as having a personality disorder, I really want to be myself. But to be honest I don't quite know who I am anymore.

    In relation to jobs- I enjoy working with children but it has been suggested to me from my initial AMHS consultation that because I have worked with children and the fact that these jobs requires high levels of interaction and therefore I cannot be ASD. Which is the complete reason they refused to refer me for an ASD assessment and labelled me with a personality disorder. I just worry because of my history of working with children that it will go against me (I had to explain that although I enjoy it, I really do struggle!)

    I don't mind that one day my children may have ASD, I am just worried that being given the diagnosis, could this mean that I am not a capable parent? Moreso than someone not on the spectrum?

    So many queries and worries, pros and cons going through my head.

Children
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