Pain syndrome ?

Hi I'm new to this forum but would be grateful for any help. We are pretty certain my 10 year old daughter has aspergers. The school are progressing a diagnosis but I know this takes time so we will probably try and get a private assessment too. She is generally very good at managing things and masking. Unfortunately she fractured her foot several months ago and has struggled ever since. She has found it hard to move on with each step of her recovery - ie struggled to give up crutches, struggled to put her full weight on her foot etc. the foot is now recovered but she  is still complaining of constant pain. Pain relief doesn't work, and even stepping into the swimming pool is agonising for her. The professionals are talking about "regionalised pain syndrome" and want to refer her to a pain clinic for CBT but there is a long wait. She is so frustrated that she isn't managing at all and had her first full meltdown at schoil today ( she usually builds things up and waits until she is home). It feels like we are on a downward spiral and I don't know how to help her. Has anyone else come across this before ? It's like she can't accept that her foot is better ? thanks x
Parents
  • Hi Vickers, thank you for replying. Im sorry you are still in pain with your foot, but it gives me some hope that her pain is real, as I dont know how we will break the cycle if its psycological. She has a scan booked in a couple of weeks so that may give us some clues. We also have some ibruprufen cream from the Doctor, which seems to give her some temporary relief. x

Reply
  • Hi Vickers, thank you for replying. Im sorry you are still in pain with your foot, but it gives me some hope that her pain is real, as I dont know how we will break the cycle if its psycological. She has a scan booked in a couple of weeks so that may give us some clues. We also have some ibruprufen cream from the Doctor, which seems to give her some temporary relief. x

Children
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