Pain syndrome ?

Hi I'm new to this forum but would be grateful for any help. We are pretty certain my 10 year old daughter has aspergers. The school are progressing a diagnosis but I know this takes time so we will probably try and get a private assessment too. She is generally very good at managing things and masking. Unfortunately she fractured her foot several months ago and has struggled ever since. She has found it hard to move on with each step of her recovery - ie struggled to give up crutches, struggled to put her full weight on her foot etc. the foot is now recovered but she  is still complaining of constant pain. Pain relief doesn't work, and even stepping into the swimming pool is agonising for her. The professionals are talking about "regionalised pain syndrome" and want to refer her to a pain clinic for CBT but there is a long wait. She is so frustrated that she isn't managing at all and had her first full meltdown at schoil today ( she usually builds things up and waits until she is home). It feels like we are on a downward spiral and I don't know how to help her. Has anyone else come across this before ? It's like she can't accept that her foot is better ? thanks x
Parents
  • hello act, I can fully understand what your daughter is going throw,I broke my foot back in July and although the bone is fully fixed the foot its self is still very painful due to muscle damage and my foot being stiff, I struggle to walk on it still,a few months after my foot was fixed I tried swimming and was so humiliated as the pain was so bad getting out of the pool that I haven't been back since,maybe your daughter is feeling the same frustrating feeling that I'm feeling with my foot and if she is I can totally understand why she got so upset in school as it makes you feel helpless in every thing you do,a break takes time to heal and so does the fact her foot might feel different to how it felt before,I no mine does,my youngest has autism and he found the whole thing with me just having a cast on upsetting,he still mentions my broken foot now,I really hope I've helped in anyway even if it is from just someone who has broken her foot,with your daughter I just think she needs time and maybe more reassurance?.good luck

Reply
  • hello act, I can fully understand what your daughter is going throw,I broke my foot back in July and although the bone is fully fixed the foot its self is still very painful due to muscle damage and my foot being stiff, I struggle to walk on it still,a few months after my foot was fixed I tried swimming and was so humiliated as the pain was so bad getting out of the pool that I haven't been back since,maybe your daughter is feeling the same frustrating feeling that I'm feeling with my foot and if she is I can totally understand why she got so upset in school as it makes you feel helpless in every thing you do,a break takes time to heal and so does the fact her foot might feel different to how it felt before,I no mine does,my youngest has autism and he found the whole thing with me just having a cast on upsetting,he still mentions my broken foot now,I really hope I've helped in anyway even if it is from just someone who has broken her foot,with your daughter I just think she needs time and maybe more reassurance?.good luck

Children
No Data