Dire diagnosis discomfort

I had my first meeting two days ago with a consultant psychologist, for a diagnosis of AS (or ASD or whatever it's called just now).  I deliberately avoided thinking about it much, as I wanted to go into it without too many preconceptions.  I wish I had done my research on reflection. It was weird, like being interviewed by a barrister (albeit a very polite one!).  It was as if she had starterd forming opinions about me from the moment the clock started, so to speak.  It was not anything like a normal conversation. I felt that she didn;t gain anything ebyond the most superficial and one-sided view of who I am or why I think I have Aspergers (which is what I'll call it in this post, whether it's outdated or not).

I was asked questions which were either very leading or very blunt. I could tell what she was fishing for a lot of the time, eg: she asked me about routines etc. Obviously, the "right" answer is that my life is governed by routines which I get very upset about if they are disrupted. But in my case, that isn't by any means always true. But when only asked to say whether I might call round to see my girlfriend without planning it, and for my answer to be yes, sometimes - and for me to see her writing something down, then move onto something else - it makes me think she's made a decision on my level of spontanaity just from that!  

Context is everything, and her questioning gave no scope for context.  I rarely do anything socially spontaneously. Sometimes somebody might try to persuade me. Usually I resist but occasionally I might give in. When I have gven in, and gone along with whatever the social thing might be (it would only ever be something small for me to give in), I find I can enjoy it a lot and I can end up feeling almost elated that my fears turned out to be unfounded.  So I could truthfully answer the question: "Do you enjoy social occasions?" and "Do you like acting spontaneously?" with a Yes.  But that would give a very incomplete and misleading impression without the context.

I felt that this was how the whole interview went.  She asked me to perform what were clearly children's 'tests', such as looking through a picture story book and coming up with a narrative, or pretending random small objects were things or people and making up a simple story. Or miming instructions on how to clean your teeth.

I gave her my old school reports which I thought illustrated very clearly that I had what would now be diagnosed as ADHD (full of comments such as "Can do good work if can concentrate for more than a few minutes" "Lacks concentration" "Must learn to control his silly behaviour" etc  - literally tens or dozens like this from age 7 to age 16).  But she glanced through them and dismissed them, saying words to the effect that they didn't show any indications of ADHD, just 'obstructional resistance', and she couldn't use them as evidence of childhood behaviour for diagnostic purposes.

I am going to be seeng her again in January, so at least I'll be forewarned as to what to expect. I found the whole thing surprisingly intrusive, remote, out of my control and very uncomfortable.  I'm sure she's decided I'm quite different to how I actually am.

  • Former Member
    Former Member

    There are just as many people with autistic traits in their 50s as in their teens or twenties etc. I think we often need diagnosis when the problems of not understanding ourselves builds up and becomes too great to cope with any more.

    People of our age went through school before Aspergers was recognised at all. Also, times have changed and schools are different now and working environments have changed too. Modern schools may well be tougher for kids with ASD than when we went through school as there was more structure and control then. Open plan offices are now normal and this is a bad thing for people with autism. So, kids nowadays are perhaps more likely to hit problems earlier on whilst we are now beginning to be revealed by the changing modern life.

  • Thanks, RCSocks. Hope you don't mind that I just looked at your 'profile' and see you were 56 when diagnosed (as I will be if this drags on until February!).  

    I don't know why, but I had formed an impression that adult diagnoses were rare. But several people on this forum (and Wrong Planet) are in their 50s, so perhaps it was a false impression.  Or perhaps people of our age are more likely to join and post on such forums?

    I admit that I interpreted the psychologist's use of tests clearly designed for children as evidence to support my prejudice! But I do try to have an open mind, so maybe I needn't be so worried. My worry is that I'll be told I'm completely normal and it's all in my imagination. Reading through everything everyone else says about their experiences and their symptoms, together with reading what literature I can find, I am convinced I am not imagining it al all!

  • Former Member
    Former Member

    Hi Technophobe,

    Just read your other posts - your aq test leaves little room for doubt in my mind and I hope your diagnosis comes to the same conclusion.

  • Former Member
    Former Member

    Try not to pre-judge what the consultant will say. Diagnosis has to involve challenging you to some extent and finding out what your rections are to social situations.

    The diagnosis was a mystery to me, whilst it was happening, and the consultant explained it afterwards. For example, he said he was deliberately provocative to see how I responded.

    So, I don't know whether you will get a diagnosis, I'm not trying to anticipate that. Some of the things you have said make it sound likely. your reaction to being asked to do achildren's task was likely to be dismissive and condescending if you have ASD. On the other hand, you say that you were able to tell what she was fishing for which indicates a degree of social communication that would point away from a diagnosis. We often don't find interviews like this comfortable - if you were entirely at your ease then that would point away from a diagnosis.