Not sure where to start?

Hi there.

I'm new to this and find this subject (autism) all very confusing. We've always known our litttle boy (now 6) was different but over the past few days it's been confirmed. His school called us in and they have advised us that they beleive he is displaying autistic behaviour. His behaviour at home can and has been challenging but nothing that we would consider as naughty, just hard work sometimes. We've been told that at shcool he finds some lessons difficult and has left the room and gone off on his own and sat there banging his head on the wall or floor, something he has never done in our presence. This is one on trait he is displaying, he does avoid eye contact and has done for most of his life although if i say to him look into my eyes he does with ease. He's affectionate to us, to friends he knows, to our pet cat. He is (oddly enough) one of the most popular kids in his school, and with all the grown ups that know him. His after school club love him to bits, his teachers love him to bits and do on. He is not naughty at all, in fact, he is an absolute angel and has a heart of gold. All of this has been a shock to us. As i said, we sort of guessed he was different but hearing him displaying the type of behaviour he expresses at school and not at home was a shock. He's also really intelligent and this comes from the school. 

We don't know what to do, where to to etc. The school have given us a letter for his GP, we are takimg him there as soon as we can. We are getting the SENCO at the school involved (who is excellent). We just don't know what to do next?

Right now i feel like a crap dad.

Parents
  • Hi Tezzah , 

        We as a family have been concerned about the behaviour of our 5 year old son for a few years now ..I had to give up work 2 years ago as he just couldnt cope with his child care and since then things have slowly got worse . This time last year after my son set fire to a rug at the age of 4 I called in the health visitor as I was concerned he seemed to be very highper active climbing all over the place running away and then finally he violently kicked a stranger who got too close to his personal space . The hv came to visit and advised us that she would refer him to the community paed . She came along and was in our house for 4 hours going through his background and behaviours ..at the end she told me that as well as ADHD she felt that he also was ASD .Since then he has been assessed in school by the speach therapist who feels at this time there is not enough evidence but he has problems with expressive communication ..Meanwhile his teacher as he is now in p1 feels that he needs a lot of extra help as he is not learning as he should and is not coping with being in a group environment ????? ( would have thought this would be evidence enough ) ..Any way after another incident at home where he stabbed my other son in the back with a pencil i took him to my local gp who took one look at him and the way he was behaving a nd referred him to CAMHS ...I feel a complete failure and a crappy mum too ..

    sorry for writting a full book lol but thought i would let u know that u r not alone and although my son has not been fully diagnosed i am pretty convinced that he is somewhere on the spectrum ..   

Reply
  • Hi Tezzah , 

        We as a family have been concerned about the behaviour of our 5 year old son for a few years now ..I had to give up work 2 years ago as he just couldnt cope with his child care and since then things have slowly got worse . This time last year after my son set fire to a rug at the age of 4 I called in the health visitor as I was concerned he seemed to be very highper active climbing all over the place running away and then finally he violently kicked a stranger who got too close to his personal space . The hv came to visit and advised us that she would refer him to the community paed . She came along and was in our house for 4 hours going through his background and behaviours ..at the end she told me that as well as ADHD she felt that he also was ASD .Since then he has been assessed in school by the speach therapist who feels at this time there is not enough evidence but he has problems with expressive communication ..Meanwhile his teacher as he is now in p1 feels that he needs a lot of extra help as he is not learning as he should and is not coping with being in a group environment ????? ( would have thought this would be evidence enough ) ..Any way after another incident at home where he stabbed my other son in the back with a pencil i took him to my local gp who took one look at him and the way he was behaving a nd referred him to CAMHS ...I feel a complete failure and a crappy mum too ..

    sorry for writting a full book lol but thought i would let u know that u r not alone and although my son has not been fully diagnosed i am pretty convinced that he is somewhere on the spectrum ..   

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