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help struggling

lanky

james seems to be getting worse at the moment, wont let us cuddle him, he just leans in to us so we have to put our arms round him, he wont let us give him a kiss keeps saying kisses tickle, even if you touch his arm says ouch tickles, last few nights he gets distressed in bed because he feet and legs tickle and bed tickles, tickles we think means feels uncomfortable I think, he can only wear certain footwear only light footwear, this morning he stood and lined all his red cars up, its starting to get upsetting that I cant even have a proper cuddle off my son, we not due back to peads june/july this year, but that's gonna be stressful because james has changed soo much since January and not in a good way frown emoticon, been having load of meltdowns lately which haven't been like that in a long time

currently being assessed for autism he is 3 years old

Parents

  • It's important to get the ECH Plan (or similar wording), used to be called a Statement of educational needs previously.  You can check it out via the home pg.  It means the school are obliged to provide him with a certain level of support.  Without it he may get no support at all, either because they don't know enough about autism or they don't want to spend their money on him.  Be sceptical about whatever is said to you, altho polite at the same time.  There are many people who say they are trained in autism, have "worked with autistic people" etc.  Really check them out on it, sometimes it doesn't mean a lot, depending on the level of training they've received.  It's best to get as much in place as poss before he starts school because if he starts without appropriate arrangements in place, then problems will arise + they'll be ringing you.

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  • It's important to get the ECH Plan (or similar wording), used to be called a Statement of educational needs previously.  You can check it out via the home pg.  It means the school are obliged to provide him with a certain level of support.  Without it he may get no support at all, either because they don't know enough about autism or they don't want to spend their money on him.  Be sceptical about whatever is said to you, altho polite at the same time.  There are many people who say they are trained in autism, have "worked with autistic people" etc.  Really check them out on it, sometimes it doesn't mean a lot, depending on the level of training they've received.  It's best to get as much in place as poss before he starts school because if he starts without appropriate arrangements in place, then problems will arise + they'll be ringing you.

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