• Replies 4 replies
  • Subscribers 23 subscribers
  • Views 884 views
  • Users 0 members are here
Options
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

GP agreed a referral... now what?

autumnleaves85

I hope I am posting in the right place. It's my first post here and I'm just looking for some support (I think!). 

Basically, my son has just turned 4 and I've had concerns for a while but havent been convinced until I wrote it down. I asked for our HV support over a month ago now and haven't received any so I went to the GP instead. 

Here is a list of most of his quirks:

*clothes becoming 'scratchy' (this is new, and not frequent)

*dislike of being dirty/messy, finger painting etc is out of the question

*Dislike of having hair/nails cut - needs a lot of preparation & discussion, role playing, tears, arguments etc for him to sit in the chair & screaming. Doesn't matter where we go, whether it's scissors or clippers etc 

* strong dislike of foods based on texture, appearance, smell, proximity to other foods

* did have delayed speech, SALT discharged at 3yo, used to use makaton but now very rarely. Still has some very immature speech sounds. Struggles for new people to understand. 

* extreme shyness 

* limited eye contact, will avoid if at possible. Will only hold for a second at most 

* physical violence displayed when frustrated

* extreme reactions when told 'No' or asked to do something

* dislike of people in personal his personal space, but no awareness/consideration for others

* strong feelings of possession (over people and objects)

* lack of empathy/remorse

* routine obsessed, doesn't respond well to unpredictable change 

* repetitive behaviour - actions, food, questions

* no ability to grasp subtle humour 

* specific interest in trains/trucks/cars/machinery etc 

* no understanding of consequences

* noticeably different behaviour  (more control, becomes introverted rather than explosive at things he doesn't like etc) at nursery/in sole care of grandparents. If myself or his Dad are present he will lash out 

* meltdowns

* dislike of unfamiliar noises such as hand dryer or other people's hoovers. 

* bossy play - his way or no way. With younger & older brother alike. 

I spoke with the GP & she agreed that the signs do point to ASD and has referred us to a community pediatrician. I just don't really know what comes next, what I can do in the mean time, who else is likely to be involved etc. Any help or advice would be greatly appreciated. 

Parents

  • Hi I hope you get an appointment soon for your son mone took a few months but worth it in the end one thing I would suggest while your waiting for appointment keep a diary of when he has bad days I did this for my son I got an exercise book and wrote down very time he had a bad day which consisted of meltdowns hitting out and what he was doing at the time it really helps me as when we had the first appointment I had it wrote down and they were really happy with it as it helped them get an idea of my sons behaviour plus any questions they asked me I could refer back it too it can be very emotional too when we had our appointment we had a child pycoligist and a speech therapist as my son is non verble they came to us then they assed him in play group as he was not yet in nursery then we did a clinic vist which also included the paediatrician then we we had to wait for them to do there assessment then go to get there findings my son was 2 years and 8 months his now 3  and getting lots of help when we did get told I felt like someone had put a knife through my heart but I was also expecting it at the same time so in another way it was a relief too just knowing it was not just me and his dad thinking something was not right I hope this helps good luck with appointments do come back on here this site is a god send everyone on here helped me massively when we was going through diagnosis x

Reply

  • Hi I hope you get an appointment soon for your son mone took a few months but worth it in the end one thing I would suggest while your waiting for appointment keep a diary of when he has bad days I did this for my son I got an exercise book and wrote down very time he had a bad day which consisted of meltdowns hitting out and what he was doing at the time it really helps me as when we had the first appointment I had it wrote down and they were really happy with it as it helped them get an idea of my sons behaviour plus any questions they asked me I could refer back it too it can be very emotional too when we had our appointment we had a child pycoligist and a speech therapist as my son is non verble they came to us then they assed him in play group as he was not yet in nursery then we did a clinic vist which also included the paediatrician then we we had to wait for them to do there assessment then go to get there findings my son was 2 years and 8 months his now 3  and getting lots of help when we did get told I felt like someone had put a knife through my heart but I was also expecting it at the same time so in another way it was a relief too just knowing it was not just me and his dad thinking something was not right I hope this helps good luck with appointments do come back on here this site is a god send everyone on here helped me massively when we was going through diagnosis x

Children
No Data