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GP agreed a referral... now what?

autumnleaves85

I hope I am posting in the right place. It's my first post here and I'm just looking for some support (I think!). 

Basically, my son has just turned 4 and I've had concerns for a while but havent been convinced until I wrote it down. I asked for our HV support over a month ago now and haven't received any so I went to the GP instead. 

Here is a list of most of his quirks:

*clothes becoming 'scratchy' (this is new, and not frequent)

*dislike of being dirty/messy, finger painting etc is out of the question

*Dislike of having hair/nails cut - needs a lot of preparation & discussion, role playing, tears, arguments etc for him to sit in the chair & screaming. Doesn't matter where we go, whether it's scissors or clippers etc 

* strong dislike of foods based on texture, appearance, smell, proximity to other foods

* did have delayed speech, SALT discharged at 3yo, used to use makaton but now very rarely. Still has some very immature speech sounds. Struggles for new people to understand. 

* extreme shyness 

* limited eye contact, will avoid if at possible. Will only hold for a second at most 

* physical violence displayed when frustrated

* extreme reactions when told 'No' or asked to do something

* dislike of people in personal his personal space, but no awareness/consideration for others

* strong feelings of possession (over people and objects)

* lack of empathy/remorse

* routine obsessed, doesn't respond well to unpredictable change 

* repetitive behaviour - actions, food, questions

* no ability to grasp subtle humour 

* specific interest in trains/trucks/cars/machinery etc 

* no understanding of consequences

* noticeably different behaviour  (more control, becomes introverted rather than explosive at things he doesn't like etc) at nursery/in sole care of grandparents. If myself or his Dad are present he will lash out 

* meltdowns

* dislike of unfamiliar noises such as hand dryer or other people's hoovers. 

* bossy play - his way or no way. With younger & older brother alike. 

I spoke with the GP & she agreed that the signs do point to ASD and has referred us to a community pediatrician. I just don't really know what comes next, what I can do in the mean time, who else is likely to be involved etc. Any help or advice would be greatly appreciated. 

Parents
  • Former Member
    Former Member

    Welcome to the forum :-)

    Your list of quirks does sound very much as though he is on the spectrum. There is lots of stuff to read on the website and on the forum (note that the forum search is separate to the search facility for the rest of the site). The assessment for ASD will focus on his communication problems rather than his sensory issues. You could take the list that you have written in your original post with you to the assessment.

    You need to work out how to avoid and manage his anger problems. Hopefully, the specialists that he is referred to will help you to learn some strategies for this.

Reply
  • Former Member
    Former Member

    Welcome to the forum :-)

    Your list of quirks does sound very much as though he is on the spectrum. There is lots of stuff to read on the website and on the forum (note that the forum search is separate to the search facility for the rest of the site). The assessment for ASD will focus on his communication problems rather than his sensory issues. You could take the list that you have written in your original post with you to the assessment.

    You need to work out how to avoid and manage his anger problems. Hopefully, the specialists that he is referred to will help you to learn some strategies for this.

Children
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