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Adult diagnosis help. At the end of the rope.

knox

Little back story. My little brother has severe autism (non-verbal ect) I was his carer for 6 years and am still involved in caring for him now. I have had the lot, temper tantrums, naked street runs and my nose broken. I also know how much you have to fight.

Now I am in need of help.

My partner clearly displays symptoms of Aspergers. As he's getting older things are getting worse as he cant act like he thinks is right, in the real world. (Ie/ he struggled to talk to strangers or people in general so will put the phone down on them or if the post man knocks on the door my partner will sit with his hands over his ears rocking).

We went to the doctors asked to be refared to someone who can diagnose/assess him. The doctor asked why we felt he needed it, the fact I had to explain what he needed because he sat refusing to talk or look at her spoke for itself.

She sent a letter to the mental health services who have since replied with a "Adult support for autism/Aspergers doesnt really exist because there is no adult services for Autism/Aspergers."

We are slowly losing hope. Any advice at all would be helpful. 

Years of fighting for my brother (though under 16 so apparently entitled to help) and now this is leaving me very very drained. Not to mention how hopeless my partner feels at the idea of continueing his life being thought of as "odd". 

 

Parents

  • Our PCT have agreed to do the assessment but we have been told that there is no support on offer once diagnosis is made. My partner was told this we believe in a bid to halt his request for and assessment..it was a case of 'what's the point of you knowing if there is nothing we can offer you afterwards'.

    We have a long way to go regarding adult provision in certain regions. We have decided to go through with the assessment and will decided how far to push things once this has been done (we are looking at Jan/Feb time currently).

    Please take the above advice and keep pushing for answers. I hope things start to look up for you all sooner rather than later. Definately get in touch with your MP if you need to. We will if needs be.

    Take care

    Oatie.

Reply

  • Our PCT have agreed to do the assessment but we have been told that there is no support on offer once diagnosis is made. My partner was told this we believe in a bid to halt his request for and assessment..it was a case of 'what's the point of you knowing if there is nothing we can offer you afterwards'.

    We have a long way to go regarding adult provision in certain regions. We have decided to go through with the assessment and will decided how far to push things once this has been done (we are looking at Jan/Feb time currently).

    Please take the above advice and keep pushing for answers. I hope things start to look up for you all sooner rather than later. Definately get in touch with your MP if you need to. We will if needs be.

    Take care

    Oatie.

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