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am sure im right about my son

lanky

so my son is 3 and is currently been assessed for autism, 2 month ago i got his diganoisis he doesnt meet the criteria but he does have autism traits, they are going to reassess him in a year or 2 again, the first time he saw the doctor and the way he acted to a car the wheels wouldnt work he had meltdown and she said in her opionion he has mild autism, he goes to nursery ony plays with cars, plays in his own little world, not interested and wont interact with children he been there for a year, but he isnt shy though and when other children hug him he gets distressed and upset, he has to be in routine or he has a meltdown or gets distressed if his routine changes abit, he aways needs directions,  repeats himself alot especally if he is anxious, chews fingers when anxious, he will only eat cold food and only eat certain food as he doesnt like textures of  certain food wich ive tried with him, his speech was very delayed only started talking about 5 month ago. when he has his metdowns he gets violent, throws himself about, hits himself off everything and try to hurt himself, he has to use pushchair and he gets very anxious  when out and about as if we dont go a certain way he can kick off and means having a meltdown which he can very a proper handful, these are tantrums as i know the difference between them, hes always lining cars up and lays on the floor watching the wheels go round, and if the wheels dont go round he gets very upset and distressed. he hates loud noises covers ears or run away, hates the hoover, motor bikes and noisy toys etc, i dont know what i meant to be saying lol first time ive posted on here

  • your son reminds me of how my son was at his age. My little boys is 5 next month abd we are in the same boat since he was 3 the same paediatrician he as seen many times has said she won't diagnose him with autism but he does show some traits and she isn't ruling it out in the future as u can normally pick it up of it's mild when they get into education at school.

    He did everything your son done with play and behaviour and speech. He has speech therapy from 3-4 years old and is now being Re referred again as he still as a mild delay and is struggling with his blending of phonics and literacy in school. I kept asking my doctor for a second opinion from another paediatrician or of someone who a specialised in learning disabilities But he has waffled on saying there isn't anyone else in the area and has referred him to CAMHS instead which I have heard can take a while to assess them! Due to have a phone call app with them next week and hoping it's not too long! 

    my son has grown out of specific things that your son does and I thought he never would but he has grown up. Bit and changed but now there are different traits showing up and his class teacher and other people have said he shows traits of an autisic child but probably wouldn't be diagnosed till he is older as it would be mild if this was the case.

    we was involved with the educational physiologist, SALT and the early years team and we are still stuck in limbo and constantly worrying ourselves as he is now in school. 

    Ask for for a second opinion is what I would say and constantly persist if you are nt happy!

    my son is different to yours in the sence that he is the opposite with socialising he is actually over friendly and can be too excitsble which puts other children and adults off of him and he's prone to being taken advantage of by other children which breaks my heart as his understanding is terrible for a 5 year old :( my son is still a terrible eater eats almost barley anything and won't try new foods simply based on how they look and their colour he will not even put it in his mouth to try it and won't want to feel it either. 

    I hope you get some help ASAP and some answers to help the situation as it is the worst as we as parents just want what's best for our child! 

    My my boy is on school action plus and is classed as having SEN but still had his statement rejected by the government because his speech had improved which is obsurd! He had a statement in nursery and he improved so much as he learns well one to one and not too well in groups! 

  • tell we got another doctor atm at the hospital who is conerned about james, the doctor he saw before said he doesnt need the criteria because my son has good eye contact, he is high functioning and clever, and he said hi to a kid, but autism kids can have eye contact and can be high functioning, they going to reassess him hopefully in a year or 2 when he goes into his new school reception class in september, i think they need to re-train lol, he goes back to see doctor in 6 month, they didnt gove much support just said keep at what im doing as im doing good job, bit hard as i struggle with him at time, but got a family worker who is finding me support etc

  • Hi,

    Is their anyway, you can get a different person to re-assess him and tell the g.p you think the person who asessesd him is very wrong. Explain, it's very hard work and that you've just been left for two years, without any support, when he has more severe difficulties than 'autistic traits.' I origionally trained in a nursey as a nursery nurse, and there was a boy, exactly as you have described in your son, and he was diagnosed with autism.

    It sounds like the person whom assesed your son, needs to go and re-train, especially in autism/aspergers and they need to have more training on how to comminucate, because if they can't spot a child with a developmental dissorder and have left you to cope, then they aren't very good and i wouldn't put up with such ignorance/basic support.