Still waiting for diagnosis of ASD but now have CFS :(

Really struggling to deal with all this I am so exhausted I just want to curl under my bed all the time 

Parents
  • Gosh.. I did not know you were also pregnant! This is a huge responsibility and I think you really do need to tell someone. 

    I would second the advice to call MIND. They may be able to offer some kind of advocacy service - someone who knows the system and can speak up for you if you are not feeling confident, and mediate between you and others.

    www.mind.org.uk/.../finding-an-advocate

    Also, as you are claiming DLA, social services are likely to be alerted to your pregnancy, so it may be best to do a "pre-emptive strike" with them at some point, listing the issues that you know you have difficulty with, and asking for specific help (perhaps around ASD), rather than waiting for them to step in. Again, this is something an advocate ought to be able to help you with. 

    Good luck x

Reply
  • Gosh.. I did not know you were also pregnant! This is a huge responsibility and I think you really do need to tell someone. 

    I would second the advice to call MIND. They may be able to offer some kind of advocacy service - someone who knows the system and can speak up for you if you are not feeling confident, and mediate between you and others.

    www.mind.org.uk/.../finding-an-advocate

    Also, as you are claiming DLA, social services are likely to be alerted to your pregnancy, so it may be best to do a "pre-emptive strike" with them at some point, listing the issues that you know you have difficulty with, and asking for specific help (perhaps around ASD), rather than waiting for them to step in. Again, this is something an advocate ought to be able to help you with. 

    Good luck x

Children
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