Parents of children with suspected asd/traits

What do you do? i am fed up, i know i have wrote about this before, however i really am fed up, i think my son is struggling with the change from infants to juniors in school,his behaviour is worst than ever.

Every single night we are having meltdowns,as we always have but worst than ever.

My son is 7 we have no diagnoses,but there is plenty to suspect he has mild asd, sorry high functioning.

I have tried talking to school,however because of circumstances that are way beyond schools control and mine i would rather not mither. But have tried,but again without going into detail which i cant say its rather tricky.

I am not eating,not sleeping brilliantly,having headaches daily and genreally feeling wretched and i think its all through the sheer stress of having to be constantly on alert,not having much of a break,in fact no break what so ever.

I try as much as i can to avoid his triggers  and yet we still have a lot of behaviours.

This week hes been begging me to tell school he wont be going to church,he says its too noisy and boring?

Everything is constant,theres no break.

I have tried eating a little more today,i need to put some weight on,i need to do this for me,i need to be well,i am fed up with being on the verge of tears all the time.

A teacher in school a few months ago before september decided in her good wisdom to remove him from the sen register as he copes well in school, and he had all the help he needed, then it all went,i wasnt happy because i knew it wasnt right and i spoke to the senco she said he should be on it, why? i question myself so many times as a parent is it me? am i doing a terrible job?

Weve been in the system since my son was 2/3,seeing speech therapists,seing the audiologist who gave us a leaflet on hypercussis,seeing the pead, i am at the point now where i think whats the point?

I absolutely love my son too bits,i dont know what im trying to say,i just feel the need to vent. xxx

Parents
  • You definitely need help with working out how to establish a home environment that is calmer and more managable. I think you need to get to the GP on Monday and make it clear that you are in a desparate situation. Someone mentioned that you might get some medication but I think this is the last thing you need. You will be less in control if you are on meds.

    Can you get your other son to go to a relative or friends house so that you can spend some time one to one with your ASD son? If he has some dedicated and calm time with you then you may be able to break his habit of kicking off all of the time.

Reply
  • You definitely need help with working out how to establish a home environment that is calmer and more managable. I think you need to get to the GP on Monday and make it clear that you are in a desparate situation. Someone mentioned that you might get some medication but I think this is the last thing you need. You will be less in control if you are on meds.

    Can you get your other son to go to a relative or friends house so that you can spend some time one to one with your ASD son? If he has some dedicated and calm time with you then you may be able to break his habit of kicking off all of the time.

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