Parents of children with suspected asd/traits

What do you do? i am fed up, i know i have wrote about this before, however i really am fed up, i think my son is struggling with the change from infants to juniors in school,his behaviour is worst than ever.

Every single night we are having meltdowns,as we always have but worst than ever.

My son is 7 we have no diagnoses,but there is plenty to suspect he has mild asd, sorry high functioning.

I have tried talking to school,however because of circumstances that are way beyond schools control and mine i would rather not mither. But have tried,but again without going into detail which i cant say its rather tricky.

I am not eating,not sleeping brilliantly,having headaches daily and genreally feeling wretched and i think its all through the sheer stress of having to be constantly on alert,not having much of a break,in fact no break what so ever.

I try as much as i can to avoid his triggers  and yet we still have a lot of behaviours.

This week hes been begging me to tell school he wont be going to church,he says its too noisy and boring?

Everything is constant,theres no break.

I have tried eating a little more today,i need to put some weight on,i need to do this for me,i need to be well,i am fed up with being on the verge of tears all the time.

A teacher in school a few months ago before september decided in her good wisdom to remove him from the sen register as he copes well in school, and he had all the help he needed, then it all went,i wasnt happy because i knew it wasnt right and i spoke to the senco she said he should be on it, why? i question myself so many times as a parent is it me? am i doing a terrible job?

Weve been in the system since my son was 2/3,seeing speech therapists,seing the audiologist who gave us a leaflet on hypercussis,seeing the pead, i am at the point now where i think whats the point?

I absolutely love my son too bits,i dont know what im trying to say,i just feel the need to vent. xxx

Parents
  • Yep its shopping,its always shopping,its hellish, i just dont know where to go next or what to do,what can i do? i know hes on the spetrum,yes i doubt myself sometimes its natrual,school knows hes on the spectrum.

    christmas ic comming up too,routines change,and hes also moved up from infants to juniors so everything goes to pott.

    Ive started writing things down,everything that happens, so that hopefully the pead will take note.

    One of the ways i could ease the pressurre is to pack my job in,however i would not have much to live on and couldnt really afford it.

    I always have it in the back of my mind that we will get evicted because of the noise,its horredous!

    I have made a start this evening,because i know it cannot go on like this,by sending an email to my nearest local nas and hopefully they can point me in the right direction.

    Thanks for responding xx

Reply
  • Yep its shopping,its always shopping,its hellish, i just dont know where to go next or what to do,what can i do? i know hes on the spetrum,yes i doubt myself sometimes its natrual,school knows hes on the spectrum.

    christmas ic comming up too,routines change,and hes also moved up from infants to juniors so everything goes to pott.

    Ive started writing things down,everything that happens, so that hopefully the pead will take note.

    One of the ways i could ease the pressurre is to pack my job in,however i would not have much to live on and couldnt really afford it.

    I always have it in the back of my mind that we will get evicted because of the noise,its horredous!

    I have made a start this evening,because i know it cannot go on like this,by sending an email to my nearest local nas and hopefully they can point me in the right direction.

    Thanks for responding xx

Children
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