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Rejected medication for ADHD via right to choose (Psychiatry UK). (self harm trigger warning)

DarkElf

I don’t want this post to be long and confusing so sorry if it’s kind of vague.

Today I had an assessment for ADHD via Psychiatry UK on NHS right to choose. I know this sounds hyperbolic but my behaviour and issues have rapidly worsened over the two years to the point I know I need medical intervention to function and even though they didn’t help I have also exhausted every available anti depressant at this point.

My clinician who I have on the NHS after a year or so with an NHS Mental Health Nurse who said she couldn’t do anything for me claims I have ADHD, and I have been diagnosed with it now, but due to the fact I have attempted suicide within a year and I’m on the NHS Community Mental Health team the doctor claimed I cannot get medication.

I feel numb, angry, devastated, and I knew contesting his decision would just make it look worse as I’d look increasingly neurotic. I am seeing my clinician on Tuesday and even that feels several days too late. Has anyone else ever been refused medication for ADHD and eventually obtained it? I know this is an autism forum but I’m auDHD and holding out hope someone else will have been in the same position.

  • in reply to Listseverywhere

    How long did all this take? I got told this morning about 10 12 months. I know it sounds overly dramatic but I don't want to be in my 30s still unmedicated.

  • Hi,

    Sorry about that and you probably feel a bit deflated. However, since you are now officially diagnosed ADHD - you have a decent argument to ask for a second opinion. If overstimulation and distractions are a big issue for you, I would choose a different provider. Many folk have said it is a game changer once medicated.

    The same [Psych’ uk] pathway gave me my ASD diagnosis. The ADHD diagnosis came from ADHD 360 rtc and because of the massive overstimulation issues & distractions. Despite a full disclosure of my erratic past, they deemed it necessary to start medication straight away….and it worked. [removed by mod - rule 6] . Ask away if you need anymore info’.

    Reminder rule 6 - no medical or legal advice always seek professional help with these matters.

  • Dear DarkElf,

    Thank you for sharing this with the community, I hope you get some helpful responses from the community about their own experiences. 

    You said things have been getting worse over the last two years, that sounds like a really difficult situation to be in. Please reach out if you need any help or support from the community. 

    You may like to have a look at the mental health section of our website which has useful links to information and advice about a range of mental health issues: https://www.autism.org.uk/advice-and-guidance/topics/mental-health   

    It could be worth writing down the reasons you feel medication could be helpful for your wellbeing and explaining these to your clinician. If you find that the appointment was not helpful you could contact the local PALS team: What is PALS (Patient Advice and Liaison Service)? - NHS

    I hope some of this is helpful. 

    Take care,

    Olivia Mod