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Feeling lost and don't know where to start!

Online

My 9 year old son has just been diagnosed with ASD after 2 and a half years. Now I have the diagnosis I am not sure what to do or where to go with this.

I have spoken to his school, who originally told me that they thought he needed testing and they have a senco teacher and educational pyschiatrist coming in to look at his educational needs.

I am struggling to know how to deal with things at home. Generally he is a lovely child, he doesn't have a good memory and has issues surrounding loud noises, textures of food, cannot sit still and lack of eye contact. 

I want to know how I can help him and to understand the behaviours he displays. Does anyone have any ideas / suggestions to help?

Thanks

Parents

  • Hi

    I have two small suggestions. I wasn't diagnosed as a child but these would have helped me.

    We hate direct questions about ourselves. We don't like open questions. We don't know what you want us to say and we don't want to get it wrong. You know your son best but he may open up a bit more about his fears and what makes him anxious if you chat to him while you are doing another activity together, one that he likes.

    The diagnostic process will tell you and him what he is percieved not to be able to do. It won't tell you what he can do that neurotypical people cannot. Find his strengths, this will increase his self worth and let him define himself rather than being defined by a diagnosis.

    I chew my fingers too. Don't worry about it, we have to let the stress out somehow.

Reply

  • Hi

    I have two small suggestions. I wasn't diagnosed as a child but these would have helped me.

    We hate direct questions about ourselves. We don't like open questions. We don't know what you want us to say and we don't want to get it wrong. You know your son best but he may open up a bit more about his fears and what makes him anxious if you chat to him while you are doing another activity together, one that he likes.

    The diagnostic process will tell you and him what he is percieved not to be able to do. It won't tell you what he can do that neurotypical people cannot. Find his strengths, this will increase his self worth and let him define himself rather than being defined by a diagnosis.

    I chew my fingers too. Don't worry about it, we have to let the stress out somehow.

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