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Feeling lost and don't know where to start!

Online

My 9 year old son has just been diagnosed with ASD after 2 and a half years. Now I have the diagnosis I am not sure what to do or where to go with this.

I have spoken to his school, who originally told me that they thought he needed testing and they have a senco teacher and educational pyschiatrist coming in to look at his educational needs.

I am struggling to know how to deal with things at home. Generally he is a lovely child, he doesn't have a good memory and has issues surrounding loud noises, textures of food, cannot sit still and lack of eye contact. 

I want to know how I can help him and to understand the behaviours he displays. Does anyone have any ideas / suggestions to help?

Thanks

Parents

  • Hey Online,

    Yeah whenever I worry I eat my finegr nails, sometimes eat my finger skin and I seem to be at a loose end (can't find anything to do). If this starts to happen then every night have a worry session with your son, this didn't work for me but I'm older it might be easier for your son. Over time he's going to start acting differently, if something happens to him "say he becomes sick and is actually sick" this happened to me after I travelled in our car, ever since then I haven't liked travelling in the car. I isolate myself from others and only now do I regret it, but like I said, your son has been diagnosed at a young age and from what I've read and heard that is a good thing.

    Also in the end people will begin to notice his ASD, people notice mine now. But as you have caught it early your son might not get so bad - Well let's hope not anyway. Oh and another thing, let him know that he is different, I hate having ASD but don't let him think of it as a bad thing, let him think of it as a positive.

    Hope I've helped you out mate.

    Kindest regards,

    Matthew. Smile

Reply

  • Hey Online,

    Yeah whenever I worry I eat my finegr nails, sometimes eat my finger skin and I seem to be at a loose end (can't find anything to do). If this starts to happen then every night have a worry session with your son, this didn't work for me but I'm older it might be easier for your son. Over time he's going to start acting differently, if something happens to him "say he becomes sick and is actually sick" this happened to me after I travelled in our car, ever since then I haven't liked travelling in the car. I isolate myself from others and only now do I regret it, but like I said, your son has been diagnosed at a young age and from what I've read and heard that is a good thing.

    Also in the end people will begin to notice his ASD, people notice mine now. But as you have caught it early your son might not get so bad - Well let's hope not anyway. Oh and another thing, let him know that he is different, I hate having ASD but don't let him think of it as a bad thing, let him think of it as a positive.

    Hope I've helped you out mate.

    Kindest regards,

    Matthew. Smile

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