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Feeling lost and don't know where to start!

Online

My 9 year old son has just been diagnosed with ASD after 2 and a half years. Now I have the diagnosis I am not sure what to do or where to go with this.

I have spoken to his school, who originally told me that they thought he needed testing and they have a senco teacher and educational pyschiatrist coming in to look at his educational needs.

I am struggling to know how to deal with things at home. Generally he is a lovely child, he doesn't have a good memory and has issues surrounding loud noises, textures of food, cannot sit still and lack of eye contact. 

I want to know how I can help him and to understand the behaviours he displays. Does anyone have any ideas / suggestions to help?

Thanks

Parents

  • Hey Online, I'm Matthew a new member.

    I was diagnosed with Autism about four years ago and I'm not going to lie to you. It's tough to deal with, it's hard on the person with Autism but I can only guess that it is harder for those who look after someone with Autism. Over the next few years your son is going to have his good days but he will also have his bad days, that's how it is with me and many others on this site. My advice is give him time. Two years ago I wouldn't leave the house often and I wouldn't dare go out in our car with my mum and dad, but this is 2014 and you know I have changed so much, really I have. I don't go out in the car as much as I'd like to but I do go out more than I used to. Autism can be quite annoying sometimes, so get all the help you can and just give him time. He'll improve, after all, I did and so have many others just like your son.

    Plus you've found his ASD at an early age, that's a good thing. I was in my teens when I was diagnosed and that seemed to be quite bad for me. You should search around online, find help guides on how to care for someone with Autism, it might help you out.

    Hope I helped.

    Kind regards,

    Matthew. Smile

Reply

  • Hey Online, I'm Matthew a new member.

    I was diagnosed with Autism about four years ago and I'm not going to lie to you. It's tough to deal with, it's hard on the person with Autism but I can only guess that it is harder for those who look after someone with Autism. Over the next few years your son is going to have his good days but he will also have his bad days, that's how it is with me and many others on this site. My advice is give him time. Two years ago I wouldn't leave the house often and I wouldn't dare go out in our car with my mum and dad, but this is 2014 and you know I have changed so much, really I have. I don't go out in the car as much as I'd like to but I do go out more than I used to. Autism can be quite annoying sometimes, so get all the help you can and just give him time. He'll improve, after all, I did and so have many others just like your son.

    Plus you've found his ASD at an early age, that's a good thing. I was in my teens when I was diagnosed and that seemed to be quite bad for me. You should search around online, find help guides on how to care for someone with Autism, it might help you out.

    Hope I helped.

    Kind regards,

    Matthew. Smile

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