No help

Hi all

i imagined having asd I would get more help, but it seems I am getting less than when I had anxiety depression

for over 3 years I’ve lived in my current accommodation which is a room in a house, I feel like a prisoner as I don’t leave my room as I don’t want to see any other tenants, the noise makes me self harm and smash things, there have been other tenants doors kicked in as people are in and out letting anybody in, I don’t get much sleep nor am I eating properly just crisps and biscuits, but yet I keep getting told I’m not homeless I have a roof over my head so I don’t get anyhelp

this is not living this is existing

rant over

  • It’s horrible isn’t it, I don’t talk to the other tenants as they are junkies and alcoholics hence the noise and banging, shouting, I told my psychologist the only way I’ll get out of here is in a box, but fell on deaf ears

  • Hi, the landlord is private, rogue landlords, whenever repairs need doing they ignore the phone and email, never see them, they have so many properties they never show up here, the boiler keeps failing so only last month was without hot water for 10 days

    i have contacted shelter prior to my asd but will call them again, the CAB give me shelters number and tell me to contact them

  • Many thanks for the reply, I appreciate it

  • Thanks for the reply, my GP is of no help, I was speaking to Safe Space who sent an email to my GP requesting they support me, and there was no reply to the email, I have told my GP the issues I have and he says around housing there is nothing he can do

    i have called 111 a few times who chase up a cmht that I keep getting referred to, but they made my mh worse (before my asd diagnosis) so put in a complaint and asked to be transferred to another cmht, they now decline the referrals and won’t transfer me, they say the same as GP they can’t help with housing

    i have called Samaritans a long time ago but I’m not one for talking so felt uncomfortable with that call

    i have also spoke to MIND but they kept repeating that if I need to can I cal 999, I explained I couldn’t as it means walking past other tenants doors to open the front door, and they made me angry kept telling me to ring 999 even though I cant

    i have also attended A&E again before my asd diagnosis, and they discharge me back to my GP after speaking to me for 10 minutes

    i was referred to adult social services, he asked me what I needed help with, I replied housing, form filling and understanding my mail, his reply was CAB can help with form filling and mail, and because I have a roof over my head I’m not homeless so they won’t help, he then sent me a text message saying, you do not meet the eligibility criteria under the care act 2014

  • Hello  ,

    I’m sorry you are going through such a tough time, it’s good that you’ve let us know how you feel. Many people have similar thoughts when coping with so much and we hope you’re okay.   

    In addition to the helpful responses you’ve had, because you mentioned self-harm, we’d like to highlight some of the support you could access. If you are unable to cope with the distress or despair, it’s very important to tell someone about your feelings or thoughts of suicide. Call your GP and make an urgent appointment. Your GP can make sure you get appropriate help and support.  

    If it’s outside your GP hours call111 to reach the NHS 111 service:  

    https://www.nhs.uk/nhs-services/urgent-and-emergency-care-services/when-to-use-111/  

    The Samaritans also provide confidential non-judgemental emotional support, 24 hours a day on 116 123, or by email on jo@samaritans.org 

    MIND have information pages on coping with self harm or suicidal feelings based on the experiences of people who’ve been through it that you may find helpful.   

    If you feel you need more urgent help, our website lists some options you could consider https://www.autism.org.uk/what-we-do/help-and-support/urgent-help 

    If you are very close to doing something to hurt yourself - call 999 now or go to your nearest A&E department. There should be someone there to support you and make sure you get ongoing support.  

    You can find more information here:  

    https://www.autism.org.uk/advice-and-guidance/topics/mental-health/suicide

    Best wishes,

    Anna Mod

  • I’m sorry that things are so very bad for you in your accommodation. I’m afraid I’m totally unqualified to make any suggestions except to urge you to talk to someone about your situation. Firstly, see about getting an appointment with your GP. Other people who might be worth talking to would be The Samaritans, or anyone of the organisations listed on this website under ‘urgent help’. Even if those organisations can’t directly help you, they may be able to signpost you elsewhere.

    i think it is good you have ‘had a rant’. I’m partial to a good rant and it can help me move on to a more helpful mental state, even if the situation is dire.  I hope that you will find the help you need. 

  • I am sorry to read of your difficulties.  You don't say who is the landlord of the property you live in, but if it belongs to a local authority or housing association, I'd suggest you make sure the current experiences & impact they are having on your mental health are placed on record as that will give weight to an application to move. 

    I don't want to make any presumptions, but what sounds like single-person accommodation in an HMO perhaps originally designed as a family home is quite often not ideal, with partition walls having to serve as the only block between persons with hugely varying habits. 

    Please also consider visiting the Shelter website (the Housing & Homelessness Charity) who can provide some advice.  The CAB might also be of assistance to you via their website, or locally. 

    england.shelter.org.uk/housing_advice

  • I know how you feel.  I live in a flat and I rarely see my neighbours,  no idea of their names, last weekend the flat next to mine had a party,  plenty of noise and laughter, I wasn't invited.

    My nightmare is that if I die,  they will only discover my body months later when they knock down the door to evict me for non payment of rent.