feel as i have totally let my son down

Frown feel as if the further i try for my son the more i let him down,  god i have never given up but i feel i cant fight any more , i have had a totall bummer of a ot which has caused a lot of heartache recently at a caf meeting ect, my son is now 10 he has ASD and hemiplegic CP love him to bits i also have  othe children age 6 and 7 my 7 yr old boy is deaf ,  why do i feel like this?  it not me ......the nurse for cyps we havnt saw for  nearly 3 mnths no help from her at all i feel i am left in limbo nights are terrible as he doesnt sleep and has night terrors she was supposed to be going to help me with a programme for him but hasnt been sighted, the school stating if i need help from their he needs to be assessed from there team for a diagnosis , why when he has already got hs diagnosis , fed up , really at tebottom nowFrown

Parents
  • As well as sounding unaware, she's talking rubbish.  She isn't allowed to say what a child has or doesn't have.  She's not the concultant!  And the anxiety bit, finding out what's causing it may help but if its something like noise, crowds, having demands made etc, you can't avoid them altogether.  I think I'd call and ask to speak to her manager and say you aren't happy and would like someone else.  

    Stay strong.

Reply
  • As well as sounding unaware, she's talking rubbish.  She isn't allowed to say what a child has or doesn't have.  She's not the concultant!  And the anxiety bit, finding out what's causing it may help but if its something like noise, crowds, having demands made etc, you can't avoid them altogether.  I think I'd call and ask to speak to her manager and say you aren't happy and would like someone else.  

    Stay strong.

Children
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