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feel as i have totally let my son down

patrice

Frown feel as if the further i try for my son the more i let him down,  god i have never given up but i feel i cant fight any more , i have had a totall bummer of a ot which has caused a lot of heartache recently at a caf meeting ect, my son is now 10 he has ASD and hemiplegic CP love him to bits i also have  othe children age 6 and 7 my 7 yr old boy is deaf ,  why do i feel like this?  it not me ......the nurse for cyps we havnt saw for  nearly 3 mnths no help from her at all i feel i am left in limbo nights are terrible as he doesnt sleep and has night terrors she was supposed to be going to help me with a programme for him but hasnt been sighted, the school stating if i need help from their he needs to be assessed from there team for a diagnosis , why when he has already got hs diagnosis , fed up , really at tebottom nowFrown

Parents

  • hi dear friends thanx for all your word's, i  feel rather a bit better after talking to you all, i appreciate all  your advice it does really help me, just when i feel low i feel no one understands me but i know you all do xx   my son is statemented i had to fight for tat as they refused him 2yrs ago, he came out of mainstream schol last nov, , i ave a lot of issues with the school saying he is a politewell mannered boy and they dont see what i see!!!!  yeah rite soon a she comes home he lets it all out in front of everyone everything thats built up at school which annoed him we get it all totall meltdown screaming an shouting and hitting his siblings, but its really weird he can come out of it as quick as he went in it as if nothing has happened.... so upsetting , we had a bad night with him again last night dreaming , screaming then waking afraid but hes not awake if you know what i mean , then i had the OT  saying it isnt ASD as he s a lovely boy  and she couldnt see any other problems regarding hs global motorskill diff,  and that it was all anxietys which is causing him to react like this , she says if we find whats causing the anxietys then he wil be ok!!!!!!!  WHAT THE HELL IS SHE ON ABOUT!!!!!!  im so  stressed  i rang my sons consultant and told her what she said she was v annoyed and said she was dictating a letter off as we spoke so im expecting greif from the OT,  in my eyes she is saying he has no problems at all ...... she wants to spend time at home with us to see th son i do have Frown  sorry for yacking on at you all xx

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  • hi dear friends thanx for all your word's, i  feel rather a bit better after talking to you all, i appreciate all  your advice it does really help me, just when i feel low i feel no one understands me but i know you all do xx   my son is statemented i had to fight for tat as they refused him 2yrs ago, he came out of mainstream schol last nov, , i ave a lot of issues with the school saying he is a politewell mannered boy and they dont see what i see!!!!  yeah rite soon a she comes home he lets it all out in front of everyone everything thats built up at school which annoed him we get it all totall meltdown screaming an shouting and hitting his siblings, but its really weird he can come out of it as quick as he went in it as if nothing has happened.... so upsetting , we had a bad night with him again last night dreaming , screaming then waking afraid but hes not awake if you know what i mean , then i had the OT  saying it isnt ASD as he s a lovely boy  and she couldnt see any other problems regarding hs global motorskill diff,  and that it was all anxietys which is causing him to react like this , she says if we find whats causing the anxietys then he wil be ok!!!!!!!  WHAT THE HELL IS SHE ON ABOUT!!!!!!  im so  stressed  i rang my sons consultant and told her what she said she was v annoyed and said she was dictating a letter off as we spoke so im expecting greif from the OT,  in my eyes she is saying he has no problems at all ...... she wants to spend time at home with us to see th son i do have Frown  sorry for yacking on at you all xx

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