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feel as i have totally let my son down

patrice

Frown feel as if the further i try for my son the more i let him down,  god i have never given up but i feel i cant fight any more , i have had a totall bummer of a ot which has caused a lot of heartache recently at a caf meeting ect, my son is now 10 he has ASD and hemiplegic CP love him to bits i also have  othe children age 6 and 7 my 7 yr old boy is deaf ,  why do i feel like this?  it not me ......the nurse for cyps we havnt saw for  nearly 3 mnths no help from her at all i feel i am left in limbo nights are terrible as he doesnt sleep and has night terrors she was supposed to be going to help me with a programme for him but hasnt been sighted, the school stating if i need help from their he needs to be assessed from there team for a diagnosis , why when he has already got hs diagnosis , fed up , really at tebottom nowFrown

Parents

  • Hold on! I can't understand totally what you are going through.  I have on son with ASD, OCD, depression and he has attempted suicide.  I hit rock bottom a while a go and ended up yelling and swearing down the phone  to a very confused BT engineer, who couldn't understand why in an AS house it is can be an emergancy to be without the internet for 10 days!

    The night terrors, we went through a really bad spell of those, and I found having a low level story cd going, in the background (if they will tolerate it) seemed to help.  

    The school, well I could fill a novel, but what I will say is have you shown them how you are feeling, they sometimes seem to think of us as robots, and it isn't until you break down infront of them and explain that you need help now, if you can find out why they are wanting to do the assessments, then you can either produce the relevent bit of paper, if you have it or you can understand their thinking.

    I won't say stay strong, I will say we are here and we do understand Smile

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  • Hold on! I can't understand totally what you are going through.  I have on son with ASD, OCD, depression and he has attempted suicide.  I hit rock bottom a while a go and ended up yelling and swearing down the phone  to a very confused BT engineer, who couldn't understand why in an AS house it is can be an emergancy to be without the internet for 10 days!

    The night terrors, we went through a really bad spell of those, and I found having a low level story cd going, in the background (if they will tolerate it) seemed to help.  

    The school, well I could fill a novel, but what I will say is have you shown them how you are feeling, they sometimes seem to think of us as robots, and it isn't until you break down infront of them and explain that you need help now, if you can find out why they are wanting to do the assessments, then you can either produce the relevent bit of paper, if you have it or you can understand their thinking.

    I won't say stay strong, I will say we are here and we do understand Smile

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