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Ados score of 6, got some characteristics

5ammy

Hi we have been having our son assessed a while now, we had the last meeting this week he scored 6. they said its the fact he is aggressive at home and not at school does not fit. the fact that he isn't as aggressive with his dad means he hasnt, and that when he built a cake he built 6 all in a line, doesnt count because when they asked him what flavour all the cakes were he could tell them.

In simple terms its my fault he is how he is, they did not listen to what I said at all.

I didnt bond with him they said, thanks a lot. I love my son with all my heart how can they say that they wasnt around when I had im rrrrrr. I just walked out.

What do I do now, what does the score mean

Parents

  • They are talking crap!

    The ADOS is only 77% clinically reliable in high-functioning people:

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2864898/ because it was researched on classic autism cases (those at the more severe end).

    Do not let them fob you off!

    Ask your GP for a referral for a 2nd opinion out-of-area.

    They are clearly stuck on the "refrigerator mother" belief that is from the Dark Ages. (http://en.wikipedia.org/wiki/Refrigerator_mother_theory) which has long since been binned, as it should have been.

    I take it this is CAMHS?  Most CAMHS have no autism expertise and treat ASC assessment like a tick-box exercise.  Don't let them convince you that you are a bad mother.

    For all anyone knows, e.g. his dad could be on the spectrum too and therefore instinctively know your son's triggers and avoiding them.  There could be a variety of reasons why he is less aggressive with his dad.  Mums are usually the primary caregiver for one, and the same reason he is not acting out at school could be the same reason he is not acting out with his dad - because he feels safest to do so with you.

    See this: http://www.autism.org.uk/living-with-autism/understanding-behaviour/behaviour-common-questions-answered/different-behaviour-between-school-and-home.aspx

    The fact that they are unaware of this now highly known fact, means they should hang their heads in shame.

    Print off or email from those 3 links and demand they review their decision and if they refuse, go to the GP for a 2nd opinion referral.

    Most of all, don't lose heart, fight for your son and don't let them put the blame on you.  You would know in your heart if you had done something to cause his meltdowns and there surely must be other autistic behaviours.

    A 6 score on the ADOS means he has some autistic traits.

Reply

  • They are talking crap!

    The ADOS is only 77% clinically reliable in high-functioning people:

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2864898/ because it was researched on classic autism cases (those at the more severe end).

    Do not let them fob you off!

    Ask your GP for a referral for a 2nd opinion out-of-area.

    They are clearly stuck on the "refrigerator mother" belief that is from the Dark Ages. (http://en.wikipedia.org/wiki/Refrigerator_mother_theory) which has long since been binned, as it should have been.

    I take it this is CAMHS?  Most CAMHS have no autism expertise and treat ASC assessment like a tick-box exercise.  Don't let them convince you that you are a bad mother.

    For all anyone knows, e.g. his dad could be on the spectrum too and therefore instinctively know your son's triggers and avoiding them.  There could be a variety of reasons why he is less aggressive with his dad.  Mums are usually the primary caregiver for one, and the same reason he is not acting out at school could be the same reason he is not acting out with his dad - because he feels safest to do so with you.

    See this: http://www.autism.org.uk/living-with-autism/understanding-behaviour/behaviour-common-questions-answered/different-behaviour-between-school-and-home.aspx

    The fact that they are unaware of this now highly known fact, means they should hang their heads in shame.

    Print off or email from those 3 links and demand they review their decision and if they refuse, go to the GP for a 2nd opinion referral.

    Most of all, don't lose heart, fight for your son and don't let them put the blame on you.  You would know in your heart if you had done something to cause his meltdowns and there surely must be other autistic behaviours.

    A 6 score on the ADOS means he has some autistic traits.

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