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Ados score of 6, got some characteristics

5ammy

Hi we have been having our son assessed a while now, we had the last meeting this week he scored 6. they said its the fact he is aggressive at home and not at school does not fit. the fact that he isn't as aggressive with his dad means he hasnt, and that when he built a cake he built 6 all in a line, doesnt count because when they asked him what flavour all the cakes were he could tell them.

In simple terms its my fault he is how he is, they did not listen to what I said at all.

I didnt bond with him they said, thanks a lot. I love my son with all my heart how can they say that they wasnt around when I had im rrrrrr. I just walked out.

What do I do now, what does the score mean

  • BTW, just to tell you OP, that I am an autistic adult.  I scored very low on empathy test and very high on all the autistic tests.  Yet usually no-one knows I have Asperger's until I tell them.  Even our local CAMHS were gobsmacked when I told them.  Clinical tools are only part of the assessment, and they are not even essential.  They are a guide which are best used for screening and not clinical decisions.  You cannot substitute for experience, being up-to-date on autism awareness research, clinical skills and knowledge - in conjunction with observation in a variety of environments and the taking of time.  It cannot be rushed.  It's not a questionnaire exercise!

    If all else fails, secretly video your son's behaviour if possible showing the triggers for aggression etc.  Send CAMHS a copy as evidence or use it for your 2nd opinion.

  • The key thing with many CAMHS these days is that old classic you have been given "not enough traits for a diagnosis".

    The clue is in the word "spectrum".  As it's a spectrum the traits vary widely in severity and high-functioning individuals often mask a lot.  That doesn't mean they are coping nor does it mean they are not autistic.

    It just means that CAMHS have no expertise to recognise the variety of autistic presentations and that perhaps the government has given a secret directive to only diagnose the most obvious and severe cases to save money on support and services (as well as benefits).

    I can't believe that all these local CAMHS are so rubbish, there has to be more to it than that.

    It's what our CAMHS did to our eldest daughter, and we are currently undergoing a 2nd opinion out-of-area.

    They probably work on the assumption that many parents will not be aware of their rights and will be over-awed by clinical people and will accept what they are told.  Educate yourself on your rights and you know your child better than anyone, don't give up.

  • Hi, just to say this rubbish about bonding was discredited many years ago.  It is so v hurtful.  I suppose they thought they could say it because they decided he wasn't autistic enough?  These people do a lot of damage + need to get much more clued up/professional, if they say they can diagnose autism.  "Crap" sums it up.  Take Intense's advice.

  • They are talking crap!

    The ADOS is only 77% clinically reliable in high-functioning people:

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2864898/ because it was researched on classic autism cases (those at the more severe end).

    Do not let them fob you off!

    Ask your GP for a referral for a 2nd opinion out-of-area.

    They are clearly stuck on the "refrigerator mother" belief that is from the Dark Ages. (http://en.wikipedia.org/wiki/Refrigerator_mother_theory) which has long since been binned, as it should have been.

    I take it this is CAMHS?  Most CAMHS have no autism expertise and treat ASC assessment like a tick-box exercise.  Don't let them convince you that you are a bad mother.

    For all anyone knows, e.g. his dad could be on the spectrum too and therefore instinctively know your son's triggers and avoiding them.  There could be a variety of reasons why he is less aggressive with his dad.  Mums are usually the primary caregiver for one, and the same reason he is not acting out at school could be the same reason he is not acting out with his dad - because he feels safest to do so with you.

    See this: http://www.autism.org.uk/living-with-autism/understanding-behaviour/behaviour-common-questions-answered/different-behaviour-between-school-and-home.aspx

    The fact that they are unaware of this now highly known fact, means they should hang their heads in shame.

    Print off or email from those 3 links and demand they review their decision and if they refuse, go to the GP for a 2nd opinion referral.

    Most of all, don't lose heart, fight for your son and don't let them put the blame on you.  You would know in your heart if you had done something to cause his meltdowns and there surely must be other autistic behaviours.

    A 6 score on the ADOS means he has some autistic traits.