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Weigh more but feel worse physically

Lilac

So I used to weigh less but I gained a stone though it took a long time to do. I got referred to an eating disorder team when I was worse when I was nearly 18 (I'm 24 now) they knew I had autism and how it effected things but still diagnosed me with ednos. I didn't really gain whilst I saw them for 6 months and then they had a review meeting and told me I didn't have an eating disorder and they got it wrong, it was just my autism cause I don't like changes. So then they got rid of me and the general mental health people wouldn't help cause they don't deal with eating problems, so I've been trying to deal with it on my own ever since. I've felt dizzy and tired for months and I'm getting a doctors appointment when they're is one available but it's frustrating when I gain weight get to nearly a normal weight and yet I feel worse physically. My sister said I'm a woman now not a child so that would make a difference. I don't want to gain more weight though.

Parents

  • Hello ,

    I'm sorry to hear that you're struggling in this way. It's good to hear that you're going to hopefully get some support. You may like to have a look at out pages on eating disorders for people with autism:

    https://www.autism.org.uk/advice-and-guidance/topics/mental-health/eating-disorders

    I hope this helps,

    ChloeMod

  • in reply to Chloe Mod

    I'm only going to the doctor about my dizziness and tiredness, I'm expecting to just have a blood test and my blood pressure checked. I don't have a diagnosis of an eating disorder since the person who diagnosed it, took it back and said they'd got it wrong, it's just my autism cause I don't like changes. 

  • in reply to Lilac

    Hello Lilac, I'm Number.

    We autists do struggle with all manner of weird and wonderful thoughts and behaviours that normies simply can't (or won't) understand.  It is lonely.

    The good news (from my experience) is that although we can struggle for ages and it can seem endless and hopeless (because one is effectively fighting with oneself) breakthroughs can happen very dramatically and positively from out of nowhere.

    I suffered from regulation control in respect to my drinking of booze.  I wasn't a raging drunk by any means, but my relationship with alcohol was not appropriate.  I spent ages focused on that as "the problem" which is a perfectly sensible approach, but it got me nowhere.  However, when I realised that it wasn't the problem, but merely a symptom......then I made dramatic progress and resolved the alcohol issue without even needing to think about it.

    I tell you these things for three reasons;

    1.  Rest assured, you are not alone in your struggles.

    2.  The thing that you feel is the issue (in your case eating) may not be what actually needs tackling.

    3.  Never despair, there is always hope.

    I hope to run into you again on the pages.

    Best wishes

    Number.

Reply
  • in reply to Lilac

    Hello Lilac, I'm Number.

    We autists do struggle with all manner of weird and wonderful thoughts and behaviours that normies simply can't (or won't) understand.  It is lonely.

    The good news (from my experience) is that although we can struggle for ages and it can seem endless and hopeless (because one is effectively fighting with oneself) breakthroughs can happen very dramatically and positively from out of nowhere.

    I suffered from regulation control in respect to my drinking of booze.  I wasn't a raging drunk by any means, but my relationship with alcohol was not appropriate.  I spent ages focused on that as "the problem" which is a perfectly sensible approach, but it got me nowhere.  However, when I realised that it wasn't the problem, but merely a symptom......then I made dramatic progress and resolved the alcohol issue without even needing to think about it.

    I tell you these things for three reasons;

    1.  Rest assured, you are not alone in your struggles.

    2.  The thing that you feel is the issue (in your case eating) may not be what actually needs tackling.

    3.  Never despair, there is always hope.

    I hope to run into you again on the pages.

    Best wishes

    Number.

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