Adult female with recent Asperger Syndrome diagnosis - how are you supposed to feel?

I have thought I had the symptoms of Asperger Syndrome for the last three or four years, and my difficulty coping with things like change got to the point that I went to my doctor and asked to be referred to be assessed because I need help. My GP said I didn't have it, and he could tell because of how I dress, but he referred me anyway.

I was assessed and I was told I have Asperger Syndrome, and also Dyspraxia.

My mother, however, is convinced either it is something I have developed, or I don't have it. This is because the idea of it being genetic, or I was born that way, unsettles her. However, I know I have always felt this way, and obviously the specialist agrees. But even as a child, when teachers remarked that I had no friends, my mum did not want to believe it. The way she acts makes me feel like I am a fraud. 

Anyone else having difficulty coming to terms with a diagnosis?

Parents
  • lol I had a doctor tell me he believed I didnt have an eating disorder because of the way i dressed..? I didnt really have friends either as a child, i pretty much followed people around if they let me and i didnt really speak to people much other than my parents... they said this was a sign of my intelligence...which wasnt a particularly helpful comment as school was basically torture and they said when i got to college it would be better and there would be more intelligent people..? i had repetitive movement disorder issues ie hand flapping fidgeting with objects which i did on and off from 8 until i was 25 for hours at a time but since i spent a lot of time alone by myself in my room no one really noticed and i didnt know what i was doing so...i never really brought it up. I was diagnosed with an eating disorder when i was 15 but due to digestive issues treatment didnt really help. i would go weeks without going to the bathroom and the doctor would just say oh it will get better or i would go to my family doctor and she said maybe u arent eating enough. in eating disorder hospitals they really do not care if u are eating healthy food, they address food fears ie they want u to eat dessert kraft dinner no one counts fiber.. they read your weight graph drug u and u go to groups...yeah obviously if i dont go to the bathroom for a few weeks and i eat and dont throw up i will put on weight..its not rocket science... so after multiple years i kind of gave up on the whole thing but came across a link on eating disorders and autism spectrum and diet so am trying to turn my life around or well my eating anyways because i really havent been able to make any progress in any direction anywhere i transitioned to a mostly fluid diet because i really couldnt hold a job when i was in that much pain. and am not sure if the repetitive movement problem fucked my arm up but ive had weird numbness and stiffness achiness on the one side and difficulty/pain using my hand and i tore cartilage in my right shoulder apparently but it took about 5 years before i could get a doctor to address it as apparently i was still too strong and not in enough pain when they checked it out. my doctor just offered me antipsychotics...self diagnosed also... i dont really have a family doctor anymore due to my bad experience with the first one i just go in to get prescriptions...im really not sure who i would go to to ask for a referal or diagnosis and am pretty apprehensive about trying to have this conversation with any doctor. they usually say one problem at a time and are not good at listening. i really wish i could go to a chiropractor or massage therapist as i have back pain and other pain and feel i need some extra help other than the diet  but that whole cant hold a job still working minimum wage is really not helping me afford a chiro or massage person.... i feel like i just will go in circles forever...on my friends computer his keyboard labels are different apologies for the bad punctuation.

Reply
  • lol I had a doctor tell me he believed I didnt have an eating disorder because of the way i dressed..? I didnt really have friends either as a child, i pretty much followed people around if they let me and i didnt really speak to people much other than my parents... they said this was a sign of my intelligence...which wasnt a particularly helpful comment as school was basically torture and they said when i got to college it would be better and there would be more intelligent people..? i had repetitive movement disorder issues ie hand flapping fidgeting with objects which i did on and off from 8 until i was 25 for hours at a time but since i spent a lot of time alone by myself in my room no one really noticed and i didnt know what i was doing so...i never really brought it up. I was diagnosed with an eating disorder when i was 15 but due to digestive issues treatment didnt really help. i would go weeks without going to the bathroom and the doctor would just say oh it will get better or i would go to my family doctor and she said maybe u arent eating enough. in eating disorder hospitals they really do not care if u are eating healthy food, they address food fears ie they want u to eat dessert kraft dinner no one counts fiber.. they read your weight graph drug u and u go to groups...yeah obviously if i dont go to the bathroom for a few weeks and i eat and dont throw up i will put on weight..its not rocket science... so after multiple years i kind of gave up on the whole thing but came across a link on eating disorders and autism spectrum and diet so am trying to turn my life around or well my eating anyways because i really havent been able to make any progress in any direction anywhere i transitioned to a mostly fluid diet because i really couldnt hold a job when i was in that much pain. and am not sure if the repetitive movement problem fucked my arm up but ive had weird numbness and stiffness achiness on the one side and difficulty/pain using my hand and i tore cartilage in my right shoulder apparently but it took about 5 years before i could get a doctor to address it as apparently i was still too strong and not in enough pain when they checked it out. my doctor just offered me antipsychotics...self diagnosed also... i dont really have a family doctor anymore due to my bad experience with the first one i just go in to get prescriptions...im really not sure who i would go to to ask for a referal or diagnosis and am pretty apprehensive about trying to have this conversation with any doctor. they usually say one problem at a time and are not good at listening. i really wish i could go to a chiropractor or massage therapist as i have back pain and other pain and feel i need some extra help other than the diet  but that whole cant hold a job still working minimum wage is really not helping me afford a chiro or massage person.... i feel like i just will go in circles forever...on my friends computer his keyboard labels are different apologies for the bad punctuation.

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