Adult female with recent Asperger Syndrome diagnosis - how are you supposed to feel?

I have thought I had the symptoms of Asperger Syndrome for the last three or four years, and my difficulty coping with things like change got to the point that I went to my doctor and asked to be referred to be assessed because I need help. My GP said I didn't have it, and he could tell because of how I dress, but he referred me anyway.

I was assessed and I was told I have Asperger Syndrome, and also Dyspraxia.

My mother, however, is convinced either it is something I have developed, or I don't have it. This is because the idea of it being genetic, or I was born that way, unsettles her. However, I know I have always felt this way, and obviously the specialist agrees. But even as a child, when teachers remarked that I had no friends, my mum did not want to believe it. The way she acts makes me feel like I am a fraud. 

Anyone else having difficulty coming to terms with a diagnosis?

Parents
  • Hi Daisy,

    I have just been diagnosed myself and can only affirm the other comments. It is very difficult to accept, and must be more so for family. I am 63 and have lived in the dark about my condition all my life until recently seeking a referral from my GP. If my mother was still alive I very much doubt if she would have accepted it easily if at all. My half brother is still alive and I do not think it means anything to him. Personally I am pretty much past trying to explain to anybody (including doctors & psychiatrists).

      Try pointing out that what you have been given is an accurate diagnosis and that many of the alternatives are often worse. From that point of view I am very relieved at having been diagnosed but am having difficulty myself deciding who to tell and how. We can only hope that others will be (if not eventually) supportive of us in our difficulty- if not it is their loss and it is our responsibility to ourselves to find people who are likely to give us some acceptance and support. Good luck and try to be kind to yourself.

      Kaspersky

Reply
  • Hi Daisy,

    I have just been diagnosed myself and can only affirm the other comments. It is very difficult to accept, and must be more so for family. I am 63 and have lived in the dark about my condition all my life until recently seeking a referral from my GP. If my mother was still alive I very much doubt if she would have accepted it easily if at all. My half brother is still alive and I do not think it means anything to him. Personally I am pretty much past trying to explain to anybody (including doctors & psychiatrists).

      Try pointing out that what you have been given is an accurate diagnosis and that many of the alternatives are often worse. From that point of view I am very relieved at having been diagnosed but am having difficulty myself deciding who to tell and how. We can only hope that others will be (if not eventually) supportive of us in our difficulty- if not it is their loss and it is our responsibility to ourselves to find people who are likely to give us some acceptance and support. Good luck and try to be kind to yourself.

      Kaspersky

Children
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