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Asperger's Diagnosis in Adult Life

Jon

I was only diagnosed with Asperger's last year at the age of 39. When I think about this I can sometimes feel both angry and frustrated. I don't really blame anyone. When I did start to understand and seek help it was a real struggle and I think that this is partly what make me angry. Even now I don't get so much help or understanding.

There is a 'lost generation' of people with Asperger's who were born before Asperger's Syndrome was acknowleged:

  • A description of a condition labeled "Asperger's syndrome" by Lorna Wing first appeared in 1981.
  • In 1994, Asperger's Syndrome was added to the DSM (Diagnostic and Statistical Manual of Mental Disorders).

How do other people who recieved a late diagnosis feel about this?

Parents

  • I thoroughly agree with you Jon

    I think that if you have the condition you should be diagnosed with it, even if you do not need professional support at that time. Because you appear to be coping on the surface, is not a good reason to withhold a diagnosis. 

    Think of other things people get where they 'cope', but still get a diagnosis because they do actually have the condition.

    My diagnosis has been fantastic for me - I can understand myself, know what I am dealing with and alter my life accordingly day to day. I have been so much better since learning why I was different - even though I don't feel right now that I need any professional help.

    Of course there is a point in diagnosing people even if they seem to be coping - after all, those clinicians are not inside the AS head and cannot 'know' what it is like have the condition and how much 'coping' takes out of you. Smile

Reply

  • I thoroughly agree with you Jon

    I think that if you have the condition you should be diagnosed with it, even if you do not need professional support at that time. Because you appear to be coping on the surface, is not a good reason to withhold a diagnosis. 

    Think of other things people get where they 'cope', but still get a diagnosis because they do actually have the condition.

    My diagnosis has been fantastic for me - I can understand myself, know what I am dealing with and alter my life accordingly day to day. I have been so much better since learning why I was different - even though I don't feel right now that I need any professional help.

    Of course there is a point in diagnosing people even if they seem to be coping - after all, those clinicians are not inside the AS head and cannot 'know' what it is like have the condition and how much 'coping' takes out of you. Smile

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