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Asperger's Diagnosis in Adult Life

Jon

I was only diagnosed with Asperger's last year at the age of 39. When I think about this I can sometimes feel both angry and frustrated. I don't really blame anyone. When I did start to understand and seek help it was a real struggle and I think that this is partly what make me angry. Even now I don't get so much help or understanding.

There is a 'lost generation' of people with Asperger's who were born before Asperger's Syndrome was acknowleged:

  • A description of a condition labeled "Asperger's syndrome" by Lorna Wing first appeared in 1981.
  • In 1994, Asperger's Syndrome was added to the DSM (Diagnostic and Statistical Manual of Mental Disorders).

How do other people who recieved a late diagnosis feel about this?

Parents

  • Daisy12345 said:

    My GP said, a lot of people have Asperger Syndrome who are not assessed because they can cope. They only assess you if you need support, otherwise, according to my GP, there is no point.

    I am not sure if I agree with you GP. There would still be a point in a daignosis if only for people to acyaully gain insight from understanding themselves. From the outside someone may be seen to be 'coping'.

    My personal opinion and experience is however is actually struggling with relationships, the workplace, education, everyday living and engaging with society. with general. This in turn leads to unhappiness. I wonder if your GP differentiates between the ability to 'just about manage' and 'coping'? 

    I don't think its at all fair to wait until someone is not coping so much that it requires clinical intervention - especially when that intervention would probably mean wiating a year for a referal and no support services anyhow.

    By diagnosing someone correctly it means that they can move frowards in there life and are in a better place to help themselves.

    Smile

Reply

  • Daisy12345 said:

    My GP said, a lot of people have Asperger Syndrome who are not assessed because they can cope. They only assess you if you need support, otherwise, according to my GP, there is no point.

    I am not sure if I agree with you GP. There would still be a point in a daignosis if only for people to acyaully gain insight from understanding themselves. From the outside someone may be seen to be 'coping'.

    My personal opinion and experience is however is actually struggling with relationships, the workplace, education, everyday living and engaging with society. with general. This in turn leads to unhappiness. I wonder if your GP differentiates between the ability to 'just about manage' and 'coping'? 

    I don't think its at all fair to wait until someone is not coping so much that it requires clinical intervention - especially when that intervention would probably mean wiating a year for a referal and no support services anyhow.

    By diagnosing someone correctly it means that they can move frowards in there life and are in a better place to help themselves.

    Smile

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