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6year old diagnosed, advice much appreciated

Ash

Hi all,

recently my 6year old daughter was diagnosed with autism, language disorder, sensory processing disorder motor dyspraxia and ADHD for inattentiveness, since the diagnosis i have no more input from doctors or any help from her school although her next appointment is due anytime now. i feel like Im at total loss and letting her down. i had always noticed her differences but was never expecting such a list, it's been 4 months since her school was handed the diagnosis and they have done nothing for her despite my constant requests for getting her help and aids in class such as the wobble chairs etc. I know things can't happen at a drop of the hat, but I was constantly in and out of school telling them of my worries for her. at 1st I was told she was just immature aso could of done with a extra year in nursery, then I was fobbed off with excuse, and finally after it got to the point where it was dangerous for her that they finally started to look into it (she had wondered out of school grounds on 3 occasions without being fully aware of herself). They informed me that when they had someone in assessing another child that's my daughters name had came up and in question. When I requested help for her they told me she would need funding and a diagnosis from a doctor. They have this, and have so for 4 monthS and still nothing. I guess my questions are how long it took others to get help in school for their children, do they have a right to one on one support, or what are they allowdd? Any advice on getting the school to pull its finger out and help her rather than her just being ignored like she is right now? 

Another question I have is about her making friends, she is so friendly but its as though she doesn't know how t have a friendship, or keep one if that makes sense, unless someone is a massive part of her life and around her constantly she seems to forget about them as soon as they are out thE picture. I worry that she is lonely, about her feelings, and how she copes at school. As all mothers do I can't bare the thought of her being bullied or hurt, but she is not able to tell she these things either.

thanks for taking the time to read, any help and advice would be greatly appreciated :)

Parents

  • Well done with getting the diagnosis. Next step is the statementing  (SEN). All children with SEN should get support in school. How much is down to the needs clearly written in the statement. You are the expert of your child so you must be happy what needs are agreed on and what support your child will get.

    Before anything its important you choose the right school that can meet your child’s needs. Resource base or unit within a mainstream school or even a special school.

    First question to ask about the current school is does the head teacher\SENCO have an understanding of ASDs. How have they worked well with ASD children? Have they all or any had any training? Are they interested in your child?

    Code of Practice states that schools and parents work in partnership Smile

     “Moving her into another school is something that has been playing heavy on my mind lately”

    Sometimes you have to make difficult decisions but in the long term it’s all for the best. We moved city to find the right school and support.

    Parent Partnership and Early Birds is highly recommended !

    www.meetup.com/.../

Reply

  • Well done with getting the diagnosis. Next step is the statementing  (SEN). All children with SEN should get support in school. How much is down to the needs clearly written in the statement. You are the expert of your child so you must be happy what needs are agreed on and what support your child will get.

    Before anything its important you choose the right school that can meet your child’s needs. Resource base or unit within a mainstream school or even a special school.

    First question to ask about the current school is does the head teacher\SENCO have an understanding of ASDs. How have they worked well with ASD children? Have they all or any had any training? Are they interested in your child?

    Code of Practice states that schools and parents work in partnership Smile

     “Moving her into another school is something that has been playing heavy on my mind lately”

    Sometimes you have to make difficult decisions but in the long term it’s all for the best. We moved city to find the right school and support.

    Parent Partnership and Early Birds is highly recommended !

    www.meetup.com/.../

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