6year old diagnosed, advice much appreciated

Hi all,

recently my 6year old daughter was diagnosed with autism, language disorder, sensory processing disorder motor dyspraxia and ADHD for inattentiveness, since the diagnosis i have no more input from doctors or any help from her school although her next appointment is due anytime now. i feel like Im at total loss and letting her down. i had always noticed her differences but was never expecting such a list, it's been 4 months since her school was handed the diagnosis and they have done nothing for her despite my constant requests for getting her help and aids in class such as the wobble chairs etc. I know things can't happen at a drop of the hat, but I was constantly in and out of school telling them of my worries for her. at 1st I was told she was just immature aso could of done with a extra year in nursery, then I was fobbed off with excuse, and finally after it got to the point where it was dangerous for her that they finally started to look into it (she had wondered out of school grounds on 3 occasions without being fully aware of herself). They informed me that when they had someone in assessing another child that's my daughters name had came up and in question. When I requested help for her they told me she would need funding and a diagnosis from a doctor. They have this, and have so for 4 monthS and still nothing. I guess my questions are how long it took others to get help in school for their children, do they have a right to one on one support, or what are they allowdd? Any advice on getting the school to pull its finger out and help her rather than her just being ignored like she is right now? 

Another question I have is about her making friends, she is so friendly but its as though she doesn't know how t have a friendship, or keep one if that makes sense, unless someone is a massive part of her life and around her constantly she seems to forget about them as soon as they are out thE picture. I worry that she is lonely, about her feelings, and how she copes at school. As all mothers do I can't bare the thought of her being bullied or hurt, but she is not able to tell she these things either.

thanks for taking the time to read, any help and advice would be greatly appreciated :)

Parents
  • Hi,

    Just wanted to let you know my sons experience.

     

    I have a recently diagnosed 6 year old son. After he was diagnosed the school pushed for a copy of his report and very quickly arranged for a specialist teacher to come in and observe him in class. This was arranged by the SENCO, who then saw myself, the specialist teacher and class teacher to talk about what to do next. I am lucky in that my sons school has a specialist unit attached. 

    I am hoping to get a place on Early Birds (I think that is what its called) to learn some more about having a child with ASD. After we were given the diagnosis, I was handed a leaflet and told we would be seen in a few months, I was horrified and felt really alone and scared and like you, felt I was failing my son, because I just didn't know what to do next. i feel a massive life line has come from my local branch of the NAS. We go to play sessions and all the other parents have offered support and advice.

     My son has the same obsession with computers and his class teacher suggested that he has 10 minutes on it at the end of the day as a reward, perhaps your daughters class teacher could do something similar. As for leaving class or sneaking off, this happened twice and the school were horrified. They suggested using  books and stories to show what could happen if you go off without an adult and it hasn't happened since. As for funding, I think the school need to explain the process of how they intend to get this and what eveidence they are collecting to justify the need for any extra funding. I think, from what you have said, the school needs to pull its socks up a little bit.

    I would say, as one parent to another, do not worry too much about friendships until you have worked out all the other things. It seems like you have enough of a struggle with how things need to progress at school.

    I really hope that you get some positive outcomes from the school soon. Good luck!

     

Reply
  • Hi,

    Just wanted to let you know my sons experience.

     

    I have a recently diagnosed 6 year old son. After he was diagnosed the school pushed for a copy of his report and very quickly arranged for a specialist teacher to come in and observe him in class. This was arranged by the SENCO, who then saw myself, the specialist teacher and class teacher to talk about what to do next. I am lucky in that my sons school has a specialist unit attached. 

    I am hoping to get a place on Early Birds (I think that is what its called) to learn some more about having a child with ASD. After we were given the diagnosis, I was handed a leaflet and told we would be seen in a few months, I was horrified and felt really alone and scared and like you, felt I was failing my son, because I just didn't know what to do next. i feel a massive life line has come from my local branch of the NAS. We go to play sessions and all the other parents have offered support and advice.

     My son has the same obsession with computers and his class teacher suggested that he has 10 minutes on it at the end of the day as a reward, perhaps your daughters class teacher could do something similar. As for leaving class or sneaking off, this happened twice and the school were horrified. They suggested using  books and stories to show what could happen if you go off without an adult and it hasn't happened since. As for funding, I think the school need to explain the process of how they intend to get this and what eveidence they are collecting to justify the need for any extra funding. I think, from what you have said, the school needs to pull its socks up a little bit.

    I would say, as one parent to another, do not worry too much about friendships until you have worked out all the other things. It seems like you have enough of a struggle with how things need to progress at school.

    I really hope that you get some positive outcomes from the school soon. Good luck!

     

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