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6year old diagnosed, advice much appreciated

Ash

Hi all,

recently my 6year old daughter was diagnosed with autism, language disorder, sensory processing disorder motor dyspraxia and ADHD for inattentiveness, since the diagnosis i have no more input from doctors or any help from her school although her next appointment is due anytime now. i feel like Im at total loss and letting her down. i had always noticed her differences but was never expecting such a list, it's been 4 months since her school was handed the diagnosis and they have done nothing for her despite my constant requests for getting her help and aids in class such as the wobble chairs etc. I know things can't happen at a drop of the hat, but I was constantly in and out of school telling them of my worries for her. at 1st I was told she was just immature aso could of done with a extra year in nursery, then I was fobbed off with excuse, and finally after it got to the point where it was dangerous for her that they finally started to look into it (she had wondered out of school grounds on 3 occasions without being fully aware of herself). They informed me that when they had someone in assessing another child that's my daughters name had came up and in question. When I requested help for her they told me she would need funding and a diagnosis from a doctor. They have this, and have so for 4 monthS and still nothing. I guess my questions are how long it took others to get help in school for their children, do they have a right to one on one support, or what are they allowdd? Any advice on getting the school to pull its finger out and help her rather than her just being ignored like she is right now? 

Another question I have is about her making friends, she is so friendly but its as though she doesn't know how t have a friendship, or keep one if that makes sense, unless someone is a massive part of her life and around her constantly she seems to forget about them as soon as they are out thE picture. I worry that she is lonely, about her feelings, and how she copes at school. As all mothers do I can't bare the thought of her being bullied or hurt, but she is not able to tell she these things either.

thanks for taking the time to read, any help and advice would be greatly appreciated :)

Parents

  • Hi again Ash,

    Ok so... The SENCO is the special needs co-ordinator and I believe that every school is supposed to have one but that may not be right.  Most schools I have heard of, have a SENCO. 

    It's a good idea to check up on the school action +.  As for the teacher telling you that the wobble cushion is a waste of time, she's not an occupational therapist! 

    The statement of special needs is something that the school should be organising, especially as they have already told you she needs more funding.  The doctor wont really be able to help very much with that.  You can ask for an assesment yourself.  Is she seens by an educational psycologist or speech and language therapist?

    From what you have said, I think you are in need of someone who really knows what they are talking about.  Can I suggest getting in touch with Parent Partnership?  Put them into the search engine if you don't have the details of your local one.  I think that they might be able to give you more concrete advice.  From what you have said this is a pretty desperate situation and I wouldn't be at all happy if this were my child!

    You are not the first person I have heard talk about chosing a school with a good OFSTED which in the end doesn't benefit their child.  Results aren't everything are they?  Happiness is worth far more in my opinion.

    Keep fighting for her.  You're doing a terrific job I'm sure.  Please let me know how you get on and what school have to say!

Reply

  • Hi again Ash,

    Ok so... The SENCO is the special needs co-ordinator and I believe that every school is supposed to have one but that may not be right.  Most schools I have heard of, have a SENCO. 

    It's a good idea to check up on the school action +.  As for the teacher telling you that the wobble cushion is a waste of time, she's not an occupational therapist! 

    The statement of special needs is something that the school should be organising, especially as they have already told you she needs more funding.  The doctor wont really be able to help very much with that.  You can ask for an assesment yourself.  Is she seens by an educational psycologist or speech and language therapist?

    From what you have said, I think you are in need of someone who really knows what they are talking about.  Can I suggest getting in touch with Parent Partnership?  Put them into the search engine if you don't have the details of your local one.  I think that they might be able to give you more concrete advice.  From what you have said this is a pretty desperate situation and I wouldn't be at all happy if this were my child!

    You are not the first person I have heard talk about chosing a school with a good OFSTED which in the end doesn't benefit their child.  Results aren't everything are they?  Happiness is worth far more in my opinion.

    Keep fighting for her.  You're doing a terrific job I'm sure.  Please let me know how you get on and what school have to say!

Children
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