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6year old diagnosed, advice much appreciated

Ash

Hi all,

recently my 6year old daughter was diagnosed with autism, language disorder, sensory processing disorder motor dyspraxia and ADHD for inattentiveness, since the diagnosis i have no more input from doctors or any help from her school although her next appointment is due anytime now. i feel like Im at total loss and letting her down. i had always noticed her differences but was never expecting such a list, it's been 4 months since her school was handed the diagnosis and they have done nothing for her despite my constant requests for getting her help and aids in class such as the wobble chairs etc. I know things can't happen at a drop of the hat, but I was constantly in and out of school telling them of my worries for her. at 1st I was told she was just immature aso could of done with a extra year in nursery, then I was fobbed off with excuse, and finally after it got to the point where it was dangerous for her that they finally started to look into it (she had wondered out of school grounds on 3 occasions without being fully aware of herself). They informed me that when they had someone in assessing another child that's my daughters name had came up and in question. When I requested help for her they told me she would need funding and a diagnosis from a doctor. They have this, and have so for 4 monthS and still nothing. I guess my questions are how long it took others to get help in school for their children, do they have a right to one on one support, or what are they allowdd? Any advice on getting the school to pull its finger out and help her rather than her just being ignored like she is right now? 

Another question I have is about her making friends, she is so friendly but its as though she doesn't know how t have a friendship, or keep one if that makes sense, unless someone is a massive part of her life and around her constantly she seems to forget about them as soon as they are out thE picture. I worry that she is lonely, about her feelings, and how she copes at school. As all mothers do I can't bare the thought of her being bullied or hurt, but she is not able to tell she these things either.

thanks for taking the time to read, any help and advice would be greatly appreciated :)

Parents

  • Hey,

    firstly thank you for your words and reply. I think I feel as though i am letting her down because I don't know what help and support she entitled to and that some days, I feel as though I barely know anything about her. I know that sounds terrible but its as though she is trapped in her own little bubble and some days it's easier, then other days its as though its to much for her and she can't communicate her feelings, wants, etc across. 

    With the school, I choose it for its high standards and fantastic offsted,  all of which I don't seem to Be benefiting her at all. Moving her into another school is something that has been playing heavy on my mind lately, but it means a bit of a commute every morning, which doesn't bother me the slightest but for her can be a issue at times. The school haven't mentioned about her being on a action+ so i will question this today. The only support she is getting is from a TA with other children in the class that are behind with there work. Although this helps her catch up, it's most defiantly not enough. The school keep fobbing me off with excuses of that she needs funding and will be bought up at the next board meeting, 2 of which have happened and they are yet to have put anything in place. I just keep getting told its the system. But surely it gets to the point where they can see its dangerous and something can be done? Her teacher complained to me about her always "sneaking" off to other rooms where there is s computers and that she needs constant Supervision to keep her in class otherwise at they end up having search to round school. But she says she can't give her that with 29 other kids in the class. My reply was that I don't believe it's sneaking off, she's obsessive over computers laptops iPads, anything like that, they know that, and when she knows there is one just outside the room or in another room it's  as though she has tunnel vision and all she can focus on is that. Surely thiIsis considered as lack of care or at least a danger :despite my constant request nothing they have said they will do has actually happened yet, not even the simple things like a wobble chair to help her ewith concentrating whilst working, they have them in school, I even offered to buy her one for school, but no nothing, other than the teacher telling me she thinks there more hassle than they are worth (not very supportive huh?!) I've never heard of SENCO but I am going to read into it along with the school action+. Nor have I been told anything about a statement, but maybe that will be bought up at her next doctors appointment. 

    As for the friendships, you are right there I think, i do want her to have friends, I think any parents hates the thought of there child being alone. There times when she really wants a friend round to play from school but doesn't Because of her social skills, she seems o flitty with friendships. she seems at her happiest when she is playing a computer game with her cousins or on her ipad, but obviously I want to find other things that stimulate her.

    Thanks again for your help :)

Reply

  • Hey,

    firstly thank you for your words and reply. I think I feel as though i am letting her down because I don't know what help and support she entitled to and that some days, I feel as though I barely know anything about her. I know that sounds terrible but its as though she is trapped in her own little bubble and some days it's easier, then other days its as though its to much for her and she can't communicate her feelings, wants, etc across. 

    With the school, I choose it for its high standards and fantastic offsted,  all of which I don't seem to Be benefiting her at all. Moving her into another school is something that has been playing heavy on my mind lately, but it means a bit of a commute every morning, which doesn't bother me the slightest but for her can be a issue at times. The school haven't mentioned about her being on a action+ so i will question this today. The only support she is getting is from a TA with other children in the class that are behind with there work. Although this helps her catch up, it's most defiantly not enough. The school keep fobbing me off with excuses of that she needs funding and will be bought up at the next board meeting, 2 of which have happened and they are yet to have put anything in place. I just keep getting told its the system. But surely it gets to the point where they can see its dangerous and something can be done? Her teacher complained to me about her always "sneaking" off to other rooms where there is s computers and that she needs constant Supervision to keep her in class otherwise at they end up having search to round school. But she says she can't give her that with 29 other kids in the class. My reply was that I don't believe it's sneaking off, she's obsessive over computers laptops iPads, anything like that, they know that, and when she knows there is one just outside the room or in another room it's  as though she has tunnel vision and all she can focus on is that. Surely thiIsis considered as lack of care or at least a danger :despite my constant request nothing they have said they will do has actually happened yet, not even the simple things like a wobble chair to help her ewith concentrating whilst working, they have them in school, I even offered to buy her one for school, but no nothing, other than the teacher telling me she thinks there more hassle than they are worth (not very supportive huh?!) I've never heard of SENCO but I am going to read into it along with the school action+. Nor have I been told anything about a statement, but maybe that will be bought up at her next doctors appointment. 

    As for the friendships, you are right there I think, i do want her to have friends, I think any parents hates the thought of there child being alone. There times when she really wants a friend round to play from school but doesn't Because of her social skills, she seems o flitty with friendships. she seems at her happiest when she is playing a computer game with her cousins or on her ipad, but obviously I want to find other things that stimulate her.

    Thanks again for your help :)

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