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Sensory overload re Haemorrhoids ruining life

NAS75220

This is my first post here, so here goes.  My 29 yr old Aspie son has been plagued by haemorrhoids for years, culminating in surgery 2020, which after the immence effort it took to have it, the procedure failed.  He is constantly in pain and in fear of the swelling.  Wont take any pain relief for fear of dulling the pain and the haemorrhoid getting bigger.

We have seen consultants and even had a private consulation this week which we were told surgery would be the answer but it would be extremely painful,  for 6 weeks with an open wound and no guarantee of a pain free life after.  The doctor even said that for someone like my son who is so sensory overloaded, he wouldnt be able to cope with the pain and would feel suicidal.

so now we are left facing a life being unable to walk, do anything he wants to do, stuck at home.   He has just been given medicinal cannabis which helps

He says there is no point anymore

I really dont know how to help him.  Has anyone else been in a similar situation

Parents

  • Hi, sorry to read this.  I can relate to your son's pain and frustration. I started with haemorrhoids in 2018 and, despite surgery in 2020 to remove them (three of them allegedly—which they said was successful surgery, despite this, more returned. Every bowel movement I have is painful to some degree. The only comfort I have found is to use Germaloid cream after going to the toilet. No other treatment has worked. The Germaloid cream works within minutes of application.

    As a safety net for really bad times, I also use small ice packs (kept in the freezer). They take some getting used to though initially.  You put the ice packs in your underwear and get them as close to the haemorrhoids as possible. It's uncomfortable to begin with, but after 5 or so minutes your skin adjusts to the cold and within ten minutes the haemorrhoids have receded back into the body.

    You have to keep the anus hyper clean, however.  And never use toilet paper or any other abrasive material. I use sanitary wipes exclusively. And together with Germaloid cream (and occasional ice packs) I have it under control.     I can't stress the importance of keeping the anus clean. I have some antibacterial bed-bath wipes that I use throughout the day so that my anal hygiene is impeccable, because any amount of sweat or other debris irritates the haemorrhoids.

    It's not a subject that's discussed much, but it should be. The impact on one's overall health is dramatic. If you think about it, haemorrhoids are actually exposed veins. They affect your entire physical and mental health.      I have another appointment next week for yet another examination and a discussion about more surgery. It did take some belligerence on my part to get the NHS to take it seriously. 

    Good luck to him (and you). If he needs someone to talk to, then drop me a private message and we can arrange something. 

Reply

  • Hi, sorry to read this.  I can relate to your son's pain and frustration. I started with haemorrhoids in 2018 and, despite surgery in 2020 to remove them (three of them allegedly—which they said was successful surgery, despite this, more returned. Every bowel movement I have is painful to some degree. The only comfort I have found is to use Germaloid cream after going to the toilet. No other treatment has worked. The Germaloid cream works within minutes of application.

    As a safety net for really bad times, I also use small ice packs (kept in the freezer). They take some getting used to though initially.  You put the ice packs in your underwear and get them as close to the haemorrhoids as possible. It's uncomfortable to begin with, but after 5 or so minutes your skin adjusts to the cold and within ten minutes the haemorrhoids have receded back into the body.

    You have to keep the anus hyper clean, however.  And never use toilet paper or any other abrasive material. I use sanitary wipes exclusively. And together with Germaloid cream (and occasional ice packs) I have it under control.     I can't stress the importance of keeping the anus clean. I have some antibacterial bed-bath wipes that I use throughout the day so that my anal hygiene is impeccable, because any amount of sweat or other debris irritates the haemorrhoids.

    It's not a subject that's discussed much, but it should be. The impact on one's overall health is dramatic. If you think about it, haemorrhoids are actually exposed veins. They affect your entire physical and mental health.      I have another appointment next week for yet another examination and a discussion about more surgery. It did take some belligerence on my part to get the NHS to take it seriously. 

    Good luck to him (and you). If he needs someone to talk to, then drop me a private message and we can arrange something. 

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